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Hi All, He's been good since we've been home. No belly pain, normal poo's and appetite. The new thing is he started saying his calves and his thigh muscles felt sore. He had flag football practive yesterday, and I help coach and this came up, so I am trying not panic about it. He has a doc appt...

Thanks MLP, they actually put him on erythromycin, and I tasted the flagyl when he had to take it a few years ago. It is absoutely horrible! Doing good, still waiting on that poo, but eating and drinking without any issues.

We got home last night. Saw Dr K on Monday, and she prescribed an antibiotic. He hasnt gotten sick since late Sunday night. I have talked to multiple parents that have had similar symptoms and most of them were citing Adenovirus? Have had a few friends text and say their kid was in the ER with...

That is our fault. He said he was hungry for the first time in 5 days so I said you can try something. After the cheerios went ok this morning and he was up laughing with me on the couch watching food videos I was feeling good enough to think he may be able to have some pretzels. May have been...

This morning was better. Tub, had some dry cheerios, handful, a few small sips of ensure clear, not much, but was more active. Sat on the toilet 2 times to try to poo, but did not. Asked for some food around 4, had some pretzels and bake chips. That came back up about an hour later. Still on...

Yep they told us that as well.

Haven’t spoken to his GI yet, you know it’s the weekend. God forbid you see any of the regulars. Messages them in the portal angry that no one came to see us after 7 hours in the ER. There’s a ped doc with us today, spoke to her and voiced my displeasure in addition to what is the game plan...

I feel like iron may have played a part or piled on possibly? He had Halloween and flag football last weekend so the germs were flying. I dunno, this seems crazy to me.

That’s what I said! They said they’ve seen it last for up to a week. Ok, I’ll try some of those. He tried some Gatorade, tea etc too. Other labs look normal. WBC and neutrophils was up a bit yesterday but normalized today after fluids.

Sips of water is about all he can tolerate right now. Ensure, there is no way. They did an enema on Thurs morning and a bit came out. 2nd xray they said it was less stool, but nothing close to full. Original xray said moderate stool burden, then GI said it looked like more than moderate. He...

Woke up feeling and looking better, took a tub, but kinda started feeling lousy again as the day wore on. Still hasn’t been able to keep anything down. Labs this morning looked good. Been on iv fluids and iv zofran. Doc said he doesn’t have a large amount of stool on his X-ray. Anyone else have...

Nothing for constipation yet. He hasn’t been able to keep anything down so he is on fluids overnight. I will ask them.

Ultrasound looked good they told us, no bowel wall thickening or abcess. Finally in a room. They are going to give him fluids overnight. He got sick again in the ultrasound room, which brought me to tears. I said how long can he go without food, they want to see how he does overnight with the...

Was he getting sick or able to keep food down?

Re did labs, wbc is around 12, neutrophils 10k. Sed rate is normal everything else pretty normal. Just got another xray, and waiting to get ultrasound. Still no poo relief.

So mad I gave him the iron pill when everyone I’ve talked too said they had a bad experience with it.

Just the enema, no Miralax yet. We figured that was gonna do the trick, but so far it hasn’t, and he can’t keep anything down. We are heading to CHOP this morning.

Hi everyone, He was still not keeping anything down yesterday, so we headed to the ER. labs looked ok, xray showed large stool burden, iv fluids, zofran and an enema. Started feeling better after the fluids and zofran. Enema didn’t get poo out, but they let us go home after 6 hours there. Had...

Yes, I had this exact thought. We started seeing blood, and these were the labs that followed that before we moved back from 5 weeks to 4 weeks. He took his iron pill Monday night w food, then ended up waking up with a belly ache on Tues morning, vomiting Tues evening 2 times, and a bit this...

Hi All, Hope everyone is doing well. We are back to 4 week remicade infusions as his bloodwork has looked great, but calpro jumped to 400 and we started seeing traces of blood in his stool. Iron levels looked good, but his ferratin dropped to 5, so Dr has suggested iron supplement. His weight...