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He is almost three and dosnt drink formula but his med is sulfasalazine. His rash is more like raised little spots and not typical of the sulfasalazine rashes that I've looked up on Google, but I'll definitely be bringing it up at his paed appointment this week. I will also be contacting the ibd...

Hi thanks for checking in! We still don't know what his official diagnosis is and it will be three weeks tomorrow from his scopes, is that normal? I have been emailing the information nurses and they said they haven't heard from drs yet which is kind of strange. My wee man is doing good, there...

No still no word from crumlin since he had his scopes last Monday 🤷‍♀️

Thank you for that advice. I will wait on gastro to reach out, but I'm pretty sure they said it would be atleast 2 weeks until we hear from them with the biopsy results

Yes they will contact me when they know which one it is, and we have already met the ibd nurses who were great and have all their contact details, it's just so raw right now, having it confirmed is such a kick in the face, I wish it was me and not him. But the rational part of me is glad they...

Hi j100 thanks for asking. He had his scopes done on monday (it was rushed through as I pushed for another calprotectin to be done and also asked they check for blood occult and it came back positive and calprotectin of 4307) and they confirmed he has ibd but waiting on biopsy results to say if...

Hi J100, we had his calprotectin repeated last week and got results today that it's 4370 so still way too high and also there was again blood in his stool (microscopic) so his dr finally told me today he does not think my son is suffering from toddlers diarrhea and that its something else that...

He has been tested for celiac twice and both negative, I was so convinced it was a gluten allergy and I stopped all gluten in the house and no difference, I have also stopped dairy and made no difference. So I think it could be a bowel issue, I am just struggling with the lack of help or lack of...

Hi, I have a two year old little boy who has always had diarrhea, he has never had a solid or semi solid stool in his life. He also could go up to 10-12 times daily, like we change him a few times a day because of the mess, we have ro regularly change his bedding and shower him in the night it...