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  1. dreamintwilight

    FDA Authorizes New Long-Acting Monoclonal Antibodies for Pre-exposure Prevention of COVID-19 In immunocompromised

    I just heard about this as of this morning! This is interesting and I will be curious to find out what the availability is for providers/patients. And/or if anyone in the forum has had it yet what their experience is with it.
  2. dreamintwilight

    New study vaccine and immunosuppressants

    Let us know if you find out your results! I, too, am curious how you faired since you were on Humira at the time. 🙂
  3. dreamintwilight

    New study vaccine and immunosuppressants

    The Prevent COVID study sends a copy of the Labcorp results directly to study participants. So I got a secure email from UNC that had the document attached with the exact numbers. Tests are paid for by the study, so no payment was required from me (they told us to indicate a third party was...
  4. dreamintwilight

    New study vaccine and immunosuppressants

    Thanks, Lisa. Seems my particular med combo is pretty suppressing compared to others. 😟 I was hoping to hear from others on here enrolled in the studies also on Humira to see how it varies, but haven't heard from too many participants overall.
  5. dreamintwilight

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    Right! It’s just finally interesting to hear/see “firsthand” accounts of how people’s antibody levels varied since I don't know many people in my every day life who take biologics or meds similar to mine. My mom is enrolled in the same study and jumped from a 7.1 (while on Remicade that wasnt...
  6. dreamintwilight

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    I am also enrolled in the Prevent COVID study, which I believe is the same as your kiddo. I suppose kids are also supposed to be better at building antibodies too though, I believe. So, it would make sensefor their levels would be higher than mine (a 37 yr old)!
  7. dreamintwilight

    New study vaccine and immunosuppressants

    Wow! I’m also on high dose Humira (weekly as opposed to every other week) + 75-100mg azathioprine daily. It would be nice to know if there was a specific trend in terms of antibodies based on each medication type or combination. Like, is it possible for someone else taking the same type of meds...
  8. dreamintwilight

    New study vaccine and immunosuppressants

    Wow, so I knew my antibodies were low to begin with (thanks Humira + AZA!), but seeing how high some of your antibody levels were is amazing! My initial antibodies were 3.4 after 2 doses and after 3 doses is now 14.:confused: I’m assuming mine is so low due to being on combination meds that...
  9. dreamintwilight

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    Interesting! I was just half joking with my GI last week at my appointment that I was waiting to hear about 4th doses for immunocompromised folks as our 3rd dose wasn't considered a “booster.” I’ll have to reach out to her about this, but I’m in the same boat as others and got my 3rd dose in...
  10. dreamintwilight

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    I’m on combination therapy of Humira (weekly) + azathioprine (Imuran). I enrolled in the Prevent COVID study and had my 2nd Pfizer vaccine mid April. My first antibody test was at the end of June. I had a 3.4, which was also indicated as “high” (though obviously not as high as others). I’m...
  11. dreamintwilight

    Immunosupression and Covid Vaccine Response

    It's probably best to send a message to your doc to confirm if they want you to make any adjustments to your meds in terms of vaccine timing. However, my doc didn't think any adjustments were needed to my medicines. I take Humira weekly and daily azathioprine (another thiopurine). Both times I...
  12. dreamintwilight

    Immunosupression and Covid Vaccine Response

    Good luck Lynda Lynda! I’m getting my second dose on April 19th, so I’ll send some positive thoughts your way that morning! :giggle:
  13. dreamintwilight

    Immunosupression and Covid Vaccine Response

    That’s actually quite reassuring to hear, especially coming from someone else on weekly Humira shots! I was beginning to worry my minor side effects from the first shot was because I took my Humira the day after my first COVID shot. o_O Your Humira/COVID vaccine timing is very similar to mine as...
  14. dreamintwilight

    Immunosupression and Covid Vaccine Response

    Lucky - I’m also on weekly Humira with daily azathioprine and am curious if your GI recommended making any adjustments to the timing of your meds with your COVID vaccinations. All my doc said was to get it as soon as I could when I talked with her last Fall. I know there is not much research...
  15. dreamintwilight

    Lasik eye surgery

    Wow, Lucky! Thanks for sharing your experience! I am on weekly Humira shots w/ azathioprine too and have been wondering about lasik. Like you, I found it difficult to find any helpful info online about people on immunosuppressive meds being eligible for the procedure or not. This is...
  16. dreamintwilight

    LASIK while on immunomodulators/anti-TNF meds

    Hi all, I was just curious if anyone on here has been on immune-suppressing and/or anti-TNF medications and had LASIK or some other laser eye surgery done to improve your vision. I've often wondered if a doctor would even approve a patient to have the procedure done if they were on medications...
  17. dreamintwilight

    Manufacturer's supply on backorder?

    Has anyone tried to refill their azathioprine prescriptions lately and been told there was a delay in receiving it due to a back order with the manufacturer? This just recently happened to me this week and I went into a bit of a panic because I run out of my medication after Monday and I wasn't...
  18. dreamintwilight

    First real cold since being diagnosed...boo!

    Hey all! I'm back after a bit of a haitus. Job has been keeping my super busy, which seems to have finally caught up with me. A bug has been going around the office as well as at my husband's work (he just got over a 2 week cold that turned into an infection) and I am now trying to battle it...
  19. dreamintwilight

    Bravo TV's Real Housewife Speaks About Her Sudden Hospitalization

    I don't know if any of you watch the Real Housewives of Orange County series on Bravo. But, I was watching the most recent episodes this past weekend and wanted to share something with you. In a nutshell, one of the cast members, Vicki, experienced an unexpected hospitalization that kept her...
  20. dreamintwilight

    Anhidrosis?

    Does anyone on here have anhidrosis? I've always had a problem with not sweating, but never thought it was a medical concern. So, I never mentioned it to my doctor. My husband was Googling and found something on anhidrosis, which is basically defined as a lack of sweating. Even when I'm...
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