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Hi Ms. spaghettio. Welcome to the forum. My recommendation: avoid spaghettios :)

Second round of bloodwork came back. Had first round 7 weeks ago. Normal Blood SED rate. Normal WBC Normal RBC Normal hemoglobin Normal hematocrit Normal B12 level

Asta, a lot of times colonoscopy does not catch the Crohns so they label it IBS and the patient suffers for years. Or like in your case, they don't refer. Not referring is the most outrageous.

Daisy, Sorry to hear that. During those 8 years, did they do colonoscopy, capsule endoscopy, and small bowel series? How did they eventually catch yours?

Crystal, sorry to hear that. It's weird they told you in a letter and not in person. Is this in the U.S.? If quitting your job does not hurt you financially, then it is something to consider. Some people get stressed when they don't work and have a lot of time on their hands but many people...

I guess by now you gave back the computer thing and you just have to wait to pass the capsule (usually within 24 hrs) and the results. I think it is fascinating technology. Very cool your insurance covered it as they have strict parameters when it can be done. One is a previous, recent...

Mayflower, good luck on the test. The blood is probably from the hemmorhoids although it could be also be from an anal fissure, which is a small tear on the anal verge. As long as you did not have blood in the stool. The capsule test is a good test when colonoscopy does not show anything...

Astra: Good observation. You are correct. There are millions of people who are stressed but do not have IBS. (Now they may have other issues such as psoriasis, ezcema, heart disease, sleep insomnia, etc.) They may not experience gut issues but they may wake up 5 times in the middle of the...

Natalie writes... "I agree that telling someone that their gut problems are as a result of a poor lifestyle is wrong" I think for IBD that is true as IBD onset occurs at age 15 to 25 with a huge percentage of the cases being diagnosed by age 30. This disease is not caused by mcdonalds eating...

Hedge, again, a misdiagnosis does not mean it does not exist. While many stories exist of people who were suspected IBS or diagnosed IBS and eventually became IBD, there are millions of people who were diagnosed with IBS who will never get IBD. Again, the stats don't lie. Only one million...

Astra is correct, you do not get white stool from IBS. This is your most unusual symptom. IBS does not cause blood in the stool either, unless it truly is from an anal fissure or hemmoirhoid. With fissures, you typically only see bright red blood on toilet paper but occassionally see it on the...

I think you need a new GI specialist immediately. This is what the guy from Mayo Clinic says: "White stool at any age is not normal and should be evaluated promptly by a doctor. White stool is caused by a lack of bile, which may indicate a serious underlying problem in the liver, gallbladder or...

Goodness no. You had misdiagnosis which was actually medical malpractice. In the states, this would have been worth a lot of compensation that you were due. In the U.S., anyone that has your symptoms would have been sent to a GI specialist immediately and had colonoscopy, upper endoscopy...

Minx, MR-enterography is an excellent way to assess strictures without the x-ray. Capsule retention occurs in 2% to 4% of suspected or diagnosed Crohns cases. But you had CT scan, do you think this missed it?

Jerman, 25K???!! Wow. Did you do capsule endoscopy? Quite a few Crohns patients were missed by colonoscopy but found with capsule.

UAB girl: IBS diagnosis has been around for decades. It follows the ROME III criteria. Statistics demonstrate that IBS is usually just IBS. Sometimes scoping can miss IBD and the patient is diagnosed as IBS but in general most IBS patients really just have IBS. As much as 1/3 to 1/2 of the...

Astra: 9 out of 10 with suspect IBS actually will have IBD? No way!! The stats would be the exact opposite. In fact, only one out of 300 to 600 have IBD where as 10 out of 100 (or 40 out of 400) has IBS, in the United States. The number may actually be double this. What do you mean by is IBS...

Semicolon, I would contact the top experts in the U.S. on this issue. Even if you were being seen at Yale medical center, I don;t think they see a large number of complex fistulas, let alone what you have. Castle Connolly has lists of the best colon rectal surgeons broken down by region...

Brian, Don't understand what you mean? If current doc says sigmoidoscopy or colonoscopy, I'd get it. At least, I would do capsule endoscopy after an MRI to rule out stricturing. Current doc says no need. He is literally one of the best.

Just an observation that you guys make up such a great community. You are all non-judgemental, supportive of each other, kind, no egos taking control, no fighting. That's really great and really rare to find on a forum.