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I have a cosultation with a surgeon soon and we will discuss what proceedure I will opt for when they remove my colon. Either creating a permanent "stoma" and attach the illium accordingly ("illiostomy" I believe). Or create an internal pouch - the "J-Pouch" proceedure. Is there anyone that can...

Thanks Louise. It is a big decision (I am sure you know). Gotta live with it for the rest of my life so it helps to know what I can expect either way.

Hi. I do not have Chromes but I do have "Familial Ileostomy" (not sure I spelled that right). My understanding is though that in either case, removal of the colon (colonoscopy?) is a potential consequence. That being the case, and since I am now in the position of deciding if I want to live with...