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thanks guys. I'm going to check out the magnesium. Marilena is now off of her pred, but her GI said to keep taking calcium, which seemed odd to me since we're off the pred. Looks like I have a lot of research to do:)

Hi guys, its been a while, when it rains it pours...oldest daughter was in bad car accident, she's doing better. Then while researching food allergies to see if they could play into Marilena's Crohn's or ADHD, I had an epiphany that my 7 year old must have a food allergy (I think for years and...

Julie, could you tell me more about your exp with Claire's 504? I asked the school counselor and she told me she was looking for her paperwork to get Marilena started. That was a week ago and haven't heard from her. She told me to make sure that I was ready with what I wanted Marilena to...

When Marilena has been out of school, we simply do her homework as well as go to the online sites that practice 4th grade math, etc. But I can't do all the other stuff they cover, b/c I don't always know what is going to be covered. If Brian has or gets a 504 on his records, then he qualifies...

Mark, as much as you help people... you can be wrong as much as you want:)

hi all, been away too long. If it helps at all, we had the same kind of meeting that DustyKat did with teacher, counselor, principal and secretaries. It really helped. As a matter of fact I used Dusty's as a skeleton, thanks! We are now in the midst of setting up a 504 for Marilena, which...

Hey guys, Sorry Ej and Claire are having to go through this right now. At least they feel good! I feel like I should know what all of those tests are... We went for labs yesterday too, haven't heard back yet, but I think since we've only been on 6mp for 6 weeks that I don't get specifics from...

I'll check with Doc about mania. I just figured that we would have seen these symptoms right off the bat, not after 2 months and lowered doses... I haven't seen any adverse effects from the wean...I think. She's complained of tummy aches the last few mornings, but she asked for her...

jitters on pred Hey everybody! So, Marilena came home from school saying she is pretty close to being sent to the office b/c of misbehavior... she is the teacher's pet kind if that helps, so needless to say, I was astounded. Usually very bubbly at home, but quiet at school. She does have ADD...

So glad Jillian is feeling better! Here's to a long time of that!!!!!

I know a lot of us are going through tough decisions and really sick kids right now. Luckily, Marilena is feeling pretty good. I keep reading things that we all have felt...all of the second guessing ourselves, overwhelmed with research, guilty feelings (like me when I didn't figure out sooner...

HI Kelly, We're newly dx'd too and on 6 mp. Its too early to tell yet if its helping my daughter...but I was very scared when I read about the side effects. After a lot of research and helpful people on this website, I've come to accept that I have to do what's best for her now, day to day...

Brian's mom, So sorry to hear that your son isn't doing well. Its hard to watch, I know. We have no exp with Remicade, but know that you are in my thoughts! Scott: We actually give the Vitamin D and the omega 3 to all of our kids. so that Marilena doesn't have to feel completely alone with...

I'll adopt you Nica, ifyou have a big trust fund:) Those pediasure shakes are costly!

My dr said about the same thing, she'll just get more colds and they'll last a lot longer...like your 6 day flu. The school has been emailing me if there are cases of pneumonia or strep in her class/grade. She really hadnt missed too much school before dx. It seems like she's missed a ton in...

Our city of about 300,000 people has 2 ped GI's so I get how yours is busy! We feel lucky to have them at all, otherwise we'd be traveling to U of M. The vitamin D shouldn't bug her to take b/c its literally a pinprick size that you put on your finger and then under her tongue... that way...

Scott, I don't know if this will help, but here are some ideas. We had to try many flavors of pediasure before finding one Marilena wouldn't spit right back at us. We also blend them with ice to make a smoothie. If you think Jillian would do it. THe "sidekick" version of these has...

How about sensitive new age sausage:)

Scott, So glad Jillian made it through the night! How was the appt today? Brian's mom: Our SED was 64 at dx! My daughter is 10 and we give her 2000IU of Vitamin D daily under the tongue (liquid D). Dr said if necessary in future we could do B12 shots as it wouldn't be digested if she just...

OK... what's a SNAG?:hug: