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  1. allieinwonder

    A GI Issue deja-vu....help!

    So my GI was super nice and helpful today. He listened to me describe the pain, the ER trip, and all I have done to clear up my colon. He agreed that it isn't constipation causing the pain at this point. He doesn't want to put me through another colonoscopy (he did my last one two years ago)...
  2. allieinwonder

    A GI Issue deja-vu....help!

    I love how this article talks about how Behcets is a "uncommon subtype of inflammatory bowel disease". My Behcets mostly presents as gastrointestinal (which is why I am a member of this forum!), but my doctors do not generally treat it like IBD. My GI did today, which is really awesome!
  3. allieinwonder

    Undiagnosed Club Support Group

    So back when I was still undiagnosed (severe IBS diagnosis that I kept refusing to accept), I went to a rheumy looking for a possible SLE diagnosis after years of seeing GI's for possible crohn's. My ANA was positive, so I was assuming I would get an SLE diagnosis. Nope! My ANA was retested, and...
  4. allieinwonder

    A GI Issue deja-vu....help!

    Thanks for the replies guys, and for listening to me rant. my little penguin, it was regular. My GI probably has a better idea on how to find the problem! Jabee, I completely agree with you. I think going off the Humira has caused some sort of flare. I have very minor ulcers coming in my...
  5. allieinwonder

    Pain medication and addiction in Crohn's Disease

    Spedley, thats great that tramadol helps you. It sounds like it helps the diarrhea as well as the pain. I was on tramadol as needed for many years, until I was put on medications that had interactions with it. Tramadol actually messes with the serotonin levels in your body as part of how it...
  6. allieinwonder

    A GI Issue deja-vu....help!

    Hey guys.... So most of you won't know me, but I was a regular member of this forum years ago when I was, like you, frustrated and undiagnosed. I ended up diagnosed with Behcets disease, an autoimmune vasculitis (inflammation of the blood vessels) in December of 2012. Slowly but surely I...
  7. allieinwonder

    Undiagnosed Club Support Group

    Thanks for the perma-ban! I temporarily banned them but felt I shouldn't permanently ban them since I'm not on here often. When the troll reported posts I got emailed, which is why I replied.
  8. allieinwonder

    Undiagnosed Club Support Group

    Mindyfang is obviously a troll calling other's trolls. Her/His only posts showing up are posts making fun of the same two members over and over. I'm sorry they decided to do that. Mindyfang, Telling me to get a life after I tell you my current situation is really low. I hope you find a better...
  9. allieinwonder

    Undiagnosed Club Support Group

    Mindyfang, while I am sorry you feel people are being manipulated, I see nothing wrong with what they have suggested for KittyKat. While I am no longer active on this forum due to not being undiagnosed anymore, I still very much understand how frustrating it is to be having symptoms no doctor...
  10. allieinwonder

    Throbbing-like pain near upper left rib and stomach

    Hey 618huffman! This thread is really old, but the information in it is still relevant. In the 4 years since my last reply, I have been diagnosed with Behcets Disease, an autoimmune disease of the blood vessels. Behcets can mimic IBD as there are blood vessels in the entire body, including...
  11. allieinwonder

    All the signs, no diagnosis.

    Hello Mspinelli91, Welcome to the forum, and to the undiagnosed club! Although I am sorry you are here under these circumstances, you have come to a place where people understand what you are going through. Over the years I have been on this forum, I have seen people who have had this much...
  12. allieinwonder

    Undiagnosed Club Support Group

    Before I was diagnosed and running around a ton of ER's during my first big flare in 2010, I was put on hydrocodiene, oxycodiene, and even diluadid in the hospital. They all worked very well. When they thought it was a hernia, I was put on percocet (oxycodeine) from diagnosis till the outpatient...
  13. allieinwonder

    My 8 year long journey, my diagnosis, and how it can help YOU!

    Dahlface, YES, I have been diagnosed with tachycardia. My heart has been beating at 100-120 resting ever since I was hospitalized last December. One doctor put me on Beta Blockers for a month, and they helped, but they didn't keep me on them. Doctors freak out every time they see me because of...
  14. allieinwonder

    Undiagnosed Club Support Group

    Hey Everyone! I cannot believe it has been many months since I have dropped by. I feel like the worst person right now. :( I used to come here while at work, then left my job and somehow just forgot about my old routine. Then my disease has been causing chaos, and we are moving...ugh. Bad Allie...
  15. allieinwonder

    Feeling my worst yet...Behcet or Crohns?

    Hey! So I am just now seeing this. I feel so terrible for somehow being away from the forum so long. :( Yes, I am diagnosed with Behcet's. No, there isn't a solid "you have behcets" test, but there are a ton of ways they can test for it, and they diagnose on criteria as well. They can do a...
  16. allieinwonder

    Undiagnosed Club Support Group

    Yeah, I know the ER is probably the choice here...I just hate being there day after day trying to get into a routine so that I don't go crazy. Eat breakfast, get told what test or two will be done that day, do the tests, try and pass the time all afternoon, see the doctor and the results which...
  17. allieinwonder

    Undiagnosed Club Support Group

    Hey everyone! Gosh this thread gets so much longer so fast...O.o Well, I went to callbacks and long story short, I didn't actually get called back for Elle. They decided, for some stupid reason, Elle should be filled with a high school student. The cast list came out last night, and it ended up...
  18. allieinwonder

    Undiagnosed Club Support Group

    That stinks Gabi! I have been there before...it is a mixed bag. If you did end up getting admitted, you could finally figure out the reason why you feel bad...focus on that and make sure your doctors know EVERYTHING! Hang in there and update us when you can! Thanks for the support guys. :) I...
  19. allieinwonder

    Undiagnosed Club Support Group

    That's great, Alberta! I hope this new doctor listens to your concerns and either helps you himself or gets you to specialists that can. I totally understand about the stress after Christmas break....I work at a combined middle/high school as their IT tech, and I was SO busy all week! Somehow...
  20. allieinwonder

    Ouch. And GREEN?!!!

    I've had bright green BM's before. It scared the crap out of me too. :P looking at health websites it looks like your body isn't digesting your liver enzymes, which turns the BM green....and it is a symptom of Crohn's disease. I wouldn't worry too much about it though, especially if doesn't...
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