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Crohn's Disease Forum

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    Cannot sleep again

    Hi julesinfrance, Ive been receiving Inflix for around 8 months now (ditto moogie!) and haven't really had insomnia. I have been on the drug for a relatively short time so maybe not the best to advise on this, I would however advise that you contact your IBD Nurse (if your Hospital has one) If...
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    Is this something to mention to my ibd nurse?

    Hi Siobhan sorry to hear you're not feeling well. What you're feeling could be many things and would suggest you get to your GP as soon as poosible. In Ireland we have IBD Nurses who generally get back to you within 48hours (mine is usually the same day, lucky me, she is amazing). One thing I...
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    Have you had to...

    Hey Cornfieldgal prob best to listen to your GI, biologics are an immunosuppressants and you shouldn't take a chance. Most patients are ok, but I would consider the risk to great... feel better soon x
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    Are these normal symptoms of a flare up?

    Hi RochelleRudolph, you defo need to get your self to a doc, some patients are lucky to go into remission for many years without meds. Unfortunately it does not last for everybody. Bloody D and loosing weight, generally means that there is some ulceration in your bowels which will not go away by...
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    For IBD patients in Ireland, Programme on TV tonight re: CD & UC

    Hey Guys Did either of you manage to catch Life with.... Crohn's??? If not you can catch it on the RTE player. There was a young boy Eoghan who is only 12, diagnoised at 7 and his story is truly an inspiration to us all. He doesn't feel sorry for himself takes everything in his stride...
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    For IBD patients in Ireland, Programme on TV tonight re: CD & UC

    For anyone who lives in Ireland, on RTE @8.30pm is the programme 'Life with......' and tonight's programme is covering CD and UC. This should be interesting to see and a as I have only been diagnoised for a year or so I have been telling everyone I know to watch. The RTE website says -...
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    The day or two after infusion, what's it like?

    Ditto!!! Although everyone is different, I do feel tired for a few days after my infusions which are given on a Monday but my next one is a Friday because of a bank holiday (in Ireland) and that should help me out with the fatigue that I feel in the days after the infusion. But I put the fatigue...
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    Remicade - what's the worst that could happen?

    Hi Hannah-Rose, I have been recieving Infliximab since the start of April this year. So far it has been a miracle drug, thankfully and long may it last. I was diagnoised 17 Sep 10 so in a relatively short period of time I have gone from having every drug option ahead of me to having none. I...
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    Hesitant about going on Imuran...

    Hi Miggles I am new to Crohns and new to Imuran too. I was diagnosed last year after suffering for 3-4 years, lucky for me it's mild to moderate. The consultants here in Ireland start patients with aggressive treatment at the beginning to try and prevent surgery or at least prolong time before...
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    Picolax Prep

    Hi I'm really sorry to hear about your troubles, hopefully things start to improve for you. I'm sure that like me all you want is a day off!! Just one day! I had been given Picolax for my prep last Oct and within an hour of taken it I was vomitting and had the worst cramps I ever felt. I was...
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    Hey everybody

    Hi Sinead Thank you for your reply. It is nice to see others from Ireland on this forum. Everybody seems to know somebody else that has an IBD.... except me!!! It's nice to be able to chat with others in similiar circumstances and from the same area's. I hope that your crohns stays asleep and...
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    Hey everybody

    Hi Joan and Nancy Thank you both for your kind words, it so great to have somewhere to speak with people who know what they are talking about! Hopefully once the aza kicks in I will be feeling better. Some days are a little harder than other and it's nice to vent!! I look forward to 'venting'...
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    Hey everybody

    Hello everybody I was diagnoised with CD in Sept 2010 after suffering for 3/4 years. I was too frightened to go to my GP as I was suffering with fatigue, rapid weight loss, no appetite, constant abdominal pain and mucus/bloody D. I was missing so much work that I knew I couldn't go on like...
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