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I am an ex-Cimzia user. It worked for about 4 years and then it just stopped working. Instead of jumping to another drug in the same class I chose to go on Entyvio. Just wanted anyone thinking of doing the same to let them know that this drug can take up to six months to really kick in. So...

My 4th infusion was June 4th and had a colonoscopy on June 24th. Results have been very encouraging. Inflammation by my estimation has gone down by about 50%. Severe inflammation in the terminal ileum has almost completely healed. Inflamed areas in the colon still have a ways to go. First...

My 4th infusion was on June 4. I am waking up with stiff fingers and a little more tired than normal but beyond that everything is fine. Symptoms of Crohn's have gone down. Entyvio appears to be working.

Crohn's sufferers do have a higher risk of getting colon cancer - but that doesn't mean they will automatically get it. I've had Crohn's for 40 years with no incidence of cancer. I have yearly colonoscopies with biopsies to see if there are any indications of cancer. I am as concerned about...

I was on Cimzia and it began to lose its effectiveness so my doctor put me on Imuran to see if that would help and if it didn't Imuran could be used as a bridge drug to suppress my immune system until Entyvio started working. This was smart because it take like four months for Imuran to be...

My doctor states that it takes on average between 5 and 6 infusions to see results so this is a very slow acting medication. He also states that the longer you are on it the better your response. If you have both Crohn's and Ulcerative Colitis, presently they are both treated with the same...

After two infusions, Calprotectin test has decreased from 367 in December to 164 as of a week ago. Had third infusion today with no problems. Symptoms are only slightly better. Taking Pentasa to calm things down a bit. Seems as though we are on the right track so far.

I am on Imuran, 175 mg/d. I have been on Prednisone in the past but my doctor doesn't like to use it because when I was on it I would lose bone density.

Yes. Just had my second infusion last Thursday 3/12. I had no reaction whatsoever. I had a little bite to eat before I went and tried to drink a little more water than usual to keep hydrated two days before and had no problems. Also the nurse ran the flush an extra 15 minutes just because...

My first they mixed the stuff up in the pharmacy and then infused which took 30 minutes and then another 300 ml of saline after the Entyvio to flush for another 30 minutes. Total time was 2 hours but it wasn't so bad because I got a hot blanket and I brought some reading material. How did it...

WOW. Yea, I could see where that was more than fortunate. I have been lucky that has never happened to me (cross my fingers). I had contemplated a scope after 4 infusions but after thinking about it will reschedule one for between 5 and 6. By then if there is no improvement then I guess it...

Welcome aboard kimmidwife.

LandShark, I have certainly heard that Dr. Achkar is top shelf. Also heard of Entocort but never was on it. Since your sixth infusion is coming up does your doctor say when he wants to scope to verify improvement?

Glad to hear it is working. My bridge drug is Imuran - 175 mg. I have never taken Uceris so that is a new one one me. Yes, I also go to the CLE Clinic. My doctor is Dr. Brzezinski. He seems exited about Entyvio so we'll see. I just have to hang in there for 5 1/2 more months. It'll go quick.

Sorry to hear about this burning pain. Just wondering if you had been on another biologic before Entyvio and for how long?

My second infusion will be 3/12. I wasn't sure whether the pain was a flair-up or a side effect. I am fine today so I think it is just a side effect of Entyvio. So we'll see what the next infusion brings. It's interesting to read through to see the different responses. Some are going off it...

Stomach pain woke me up in the middle of the night so decided since I am up to read all posts in the Entyvio support group. Thought the stomach pain was a flair-up but it appears from what people have posted that this is one of the side effects to Entyvio. So will see how bad it gets.

I have had Crohn's for 40 years. After my resection in 2001 I went on azathioprine and then the last 4 years I was on Cimzia. That began to fail last summer and the doctor tried to up the dosage of Cimzia and put me back on 175 mg of azathiopine but that did not work. Decided to jump to...

I've had Crohn's for 37 years. I was on Imuran for about 8 years until it stopped working and about 2 years ago went on Cimzia. I was also concerned since I am a school bus driver so I am around kids all the time. Have not had any problems with getting sick and Cimzia has done an excellent...