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Ugh..I hope they are wrong. Crohns is enough to handle, let alone another disease. Poor kid! I hope it goes well for you guys. My daughter has been through almost every test known to man. haha. She's had CT scans, MRI, MRE, Hida Scan, Xrays, laproscopy surgery, stomach emptying, and the list...

She started on Pentasa and Prednisone with no response. They moved her to Methotrexate mid June, and still no relief. She ended up with a rash from it last week, so they are now having me give a large dose of prednisone before her weekly injections. It kept the rash away this last time, but not...

Hi vness, I know the feeling. My 10 year old daughter was just diagnosed in May and we have yet to find a medication to help her. The disease itself is worrisome, but not finding a drug to work is frustrating, especially as we try different ones and we read the potential side effects...errrrgh...

That doesn't sound right. My daughter was on 500mg three times a day for a month. I don't think they'd give more if the body only digests a certain amount. I agree with you...VERY odd. Have you considered calling a pharmacist and asking about this?

Thanks, all for your insightful responses. We have decided to go ahead with the Methotrexate and she has begun weaning off of the Prednisone. We hope and pray this will be the resolution. On another note, has anyone had their children have issues jumping/running and just generally taking the...

Hi there, Well, the Pentasa and Prednisone has had no effect whatsoever on my daughter....next step is something called Methotrexate. Does anyone have experience with this drug? We were told it is also used as a chemo drug in higher doses, but tends to do well in low doses for Crohns. The...

Wow. Such a lot of suffering for both your kids. I hope research on this disease continues and eventually all who have it can be cured.

Wow...you must have felt so helpless! What symptoms did she show that made you realize you needed to get her to the hospital and into surgery?

Thanks, DustyKat. I will check out the link. You are absolutely correct. There is nothing worse than standing by watching your child suffer without having one thing you can do to help. You just want to take the pain away and would trade places with them instantly if you could! I am soo deeply...

Thanks HI all, Thanks so much for your responses and support! It has been such a LONG road. Unlike several other stories, we were referred almost immediately to a GI doctor. My daughter has had four endoscopy procedures, and three colonoscopies, none of which ever found the Crohns. I am so...

Hi there, We just found out after 17 months of our daughter having severe abdominal pain that she has Crohn's Disease. It was a LONG journey to diagnosis. We visited FOUR GI specialists, two surgeons, a rheumatologist, nephrologist, pain clinics, chiropractors, accupuncurists in three various...