Search results

By the way, just a quick response to some of the information David posted. One thing I have learned, is that if there is a teeny tiny chance of something, and it happens to be really unusual and rare, then it is probably the situation with us. Seems like we keep dealing with issues that aren't...

Thanks for the support. I will try to get a post together for some of the other subforums shortly. He is on 9mg of Budesonide/Entocort currently. He has been on it since roughly the end of February. We struggled with a combination of Remicade and 40+mg of Prednisone on and off from last...

Update and question (for David or others): Kyle's Crohn's continues to improve (it appears anyway). We currently have him on Remicade, Methotrexate, Pentasa, Entocort along with supplements of B12, Folic Acid, Iron, Melatonin to help him sleep. Wow, that's a list. We had a flu go thru the...

Started researching enteral nutrition today, and my wife is going to speak with Kyle's GI about it. We are still waiting for the call on when we can try the Methotrexate just to try to get things under control. He only feels well enough to "function" for 2-3 hours per day at this point. He is...

I haven't been on here for a bit, but figured I would give an update. We have been struggling with Kyle still for the past few months. We weaned him off the prednisone around Christmas time, and things haven't been so great since then. He was on 5mg of prednisone to maintain, and they have...

Thanks again for the support. I generally have somewhat "conservative" views on politics, but I can tell you that once you lose your health insurance when you have kids with the kind of issues we have, it makes you understand how incredibly screwed up our "system" is here in the US. Reform...

Ok, so it has been a while since posting. I got involved in another thread about the potential impact of stomach flu, and figured I should update this page. Kyle was doing very well in July after his Remicade treatment, and got a second treatment of Remicade and it appeared that we were well...

Glad to hear Tanner is doing better! Thanks for the good wishes for Kyle. So as not to further hijack, I will update his condition on his "your story" page! Thanks, Steve

Kyle, our 12YO son with Crohn's just got the stomach flu after it went thru the rest of the family about two weeks ago. He has been on Humira for about 10-12 weeks and we were just weaning him off prednisone after his flare in June/July - he was down to 5mg every other day. Well, either the...

BTW, Kyle's has been seeing Dr. Mehta, but Dr. Bornstein was his doc in the hospital and my wife and Kyle thought he was awesome!

A quick update on Kyle: After the remicade infusion and lots of fluids he started feeling remarkably better. The Doctor Ok'd him on Sunday morning to eat "normal" food. You should have seen the look on his face, since all he wanted for days was a piece of French Toast! He ate and drank...

Yes, he was Pentasa only since diagnosis other than the Prilosec. On the daughter's blood: Nov 2009 - test in preparation for ortho appointment ANA was 320 - speckled pattern Rheumatoid factor negative MPV was 7.2 for normal range of 7.4-10.4 Overall blood results classified as "abnormal"...

First, thanks for your support and encouraging words. Things are looking up at the moment, but we have a long road in front of us at the moment. At the Doctor's office on Thursday, the plan was to start Kyle on Humira. They wanted to do the colonoscopy and endoscopy, but were talking about...

Our son Kyle was diagnosed with Crohn's in February of 2008, just 2 weeks prior to his 9th birthday. He was anemic at the time, and had been having issues for much longer than my wife and I knew prior to hospitalizing him. We look back now at pictures and memories of the 6-9 months leading to...