Search results

Hi everyone, I had a colectomy and colostomy last March and have adjusted quite well. I intended to have further surgeries and procedures so that I could be reversed as soon as possible, but have decided to stick with this for now since I am feeling so fabulous! Along those lines - since I'm...

Hi everyone, I know there was a post made a week or so ago about an itch, but I'm wondering if anyone has advice for me. I use Coloplast Sensura - 2 piece system. I love it in so many ways and have been using it since late April/early May...A few weeks back I started itching more than usual and...

Hi everyone, I'm new to this sub-thread, so forgive me if I'm asking questions that have been asked before (I scanned the earlier postings to see if there was anything that was similar, but didn't see anything). Some questions: 1 - When I was 18 (I am now 28), I went on the pill to regulate...

You are all so helpful, you have no idea. Thank you so very much! In response to some of your questions - why I don't want to stick with the ileostomy...Well, I guess I don't have any great reason for wanting it gone, except for the fact that it's annoying. I know it's silly, especially since...

Thank you so much for the support and insight! Hi everyone, Just wanted to thank everyone so much for the insight. I'm still not sure what I'll end up doing - I find it hard to turn down a surgery date now that they've finally called (and I feel like I've been waiting for so long...though in...

When you say the J-pouch won't work for Crohn's, is that something you know from experience? When my surgeon spoke to me, he told me that, at the end of the day, we don't know if it's UC or Crohn's, and even if it is Crohn's, I might be in remission to a few to several years. So, he's been...

Good luck! Lots of luck with the surgery. I hope it goes well and you have a speedy recovery. In terms of what to bring, I wore hospital gowns the whole time. If you'd rather wear your own stuff, I'd definitely suggest gowns as opposed to sets. But it's a good idea to have some comfy pants with...

Hi there Misty, Sorry - I left that detail out! Mostly because I find it confusing... For about 7 of the 8 years I've been sick, my doctors have referred to my disease as "indeterminate." My GI kept saying he wouldn't be able to tell what it was for sure until my colon was in a bottle! Ha...

Hey everyone - I posted this on the "My Story" thread, but since I have a stoma and since this thread is related to further surgery, I wonder if anyone here might have further insight...Read on and thank you so much!! I need some guidance and am hoping you can help. I've been sick for about 8...

I had a total colectomy this past March and I've never felt better (well, at least not since I first got sick about 8 years ago)! It's only been a few months, so I can't say what will happen down the line. But after 8 years of challenges and obstacles, I feel great! I have an ileostomy and a bag...

Hey everyone - I need some guidance and am hoping you can help. I've been sick for about 8 years now, went through the whole slew of medications and finally ended up in emergency surgery this past March. I had a full colectomy and now have an ileostomy. Because of my condition, what is usually...