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Josh's joints that mainly are affected are knee's, ankle's, hips, neck and fingers. I'm hoping surgery will be done just so he goes into remission after what seems like months of him being ill. I'v much admiration at how strong you are with two children with crohn's.....I seem to be nervous...

I think he'd appreciate a chat thanks Sophie, you can give him the kick up the ass he needs to put his face straight & smile for once!!! I must admit I do nag him all the time about taking tablets, eating enough, toilet habits, how does feel just to name a few......I'm actually guilty off...

Hi Dusty! Josh got diagnosed with the arthritis at the same time as his crohn's up till that time I'd put his joint pain down to growing pains........his specialist hasnt said alot about what sort of arthritis it is he just said it was classic of crohn's with the rashes and swellings and the...

Hi Inwe! Josh has just finished a 4 week course of Ferritin IV and had no reaction what so ever. His 1st dose was given over an hour to check for any reactions and the rest in half the time. Take some mints to stop the taste of iron while you have the IV Janie xxxx

He's struggling a lil bit at the moment Sophie thanks for asking......I think he's still trying to get his head around his diagnosis and cope with the tiredness side of things thats what causes most of his missed time at school and the fact his flare-up wont b*gger off!!! Did you find yourself...

Hi Sophie I'm in Bolton so not too far away from you. I don't have crohn's but my 14 yr old sons been diagnosed since March this year. Josh has missed most of school so far this year and it's heart warming to know just how much you've achieved despite missing so much school........ 7 GCSE's is...

I'v never heard of the enema's................I'l have an ask when I speak to his Consultant next, anythings worth a try!!! Can't see Josh being amused at the prospect though :ylol: His artritis is going to be treated by increasing his Azathioprine dosage too so if there is an enema that he can...

The letters a brilliant idea thats never crossed my mind before and would save me lots of time explaining to different teachers his needs and medication. Will be getting 1 drawn up asap ready for the start of school..............many thanks!! Have printed the downloads of too........cheers Joan...

I'd say the UK's worse! I'm still fighting to get DLA for Josh to help towards the hospital travel we have to do every week for Ferritin infusions and blood tests or to see the nutritionist and rheumatologist to just name a few. I was told Josh wasnt ill enough to qualify for any help. My...

I agree 100% Muppet, whats more scarier is that I got a call from Josh's head of year a few weeks ago stating that Josh had been seen with me out & about in the community shopping and that if I didnt ring school by 10am every school day to explain why Josh was not attending I would be taken to...

Hi Dusty Thanks for the reply Josh see's his specialist again 9th November after his camera's but inbetween we speak to his Crohn's nurses if we have any problems and they lease messages of importance. Ap's with his specialist seem to be like gold dust and we've also been put on a study of...

Thanks for all your replies it really means a lot knowing we're not alone in how Josh is feeling. I think he hasnt been put onto the steroids just yet because of his gastric ulcer which we wont know if its healed until his next camera's in october. We have tried the home schooling as he's only...

Up until xmas 2010 Josh was a normal healthy 14 yr old. What I thought was gastric flu turned into 8 weeks of on and off vomiting and stomach pain getting worse week by week. Early feb 2011 I decided to take Josh to A&E as his stomach pain was unbearable and all he wanted to do was sleep, his...