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Ive been reading up on how long it can take to work, lots say bout 3 mths so we will keep going for bit longer! Thanks for your replies x

Hes tried azathioprine, 6mp and methotrexate all sent his liver enzymes sky high! Havnt tried remicade yet, so maybe his consultant will try that next, im worrying that it will be surgery!

Thanks for reply, getting worried that its not going to work and that theres not a lot else left to try!

Hi my son has started humira 9 weeks ago and dosnt seem to be getting any improvement, he injects once a fortnight, how long does it take to work?

Thanks for the replies, have had a chat with my son's IBD nurse today (who's just come back from maternity leave) and she's sorting out a treatment plan with my son's consultant (who's just come back from a year's sabatical), so fingers crossed might be getting somewhere! Will definately ask...

Hi, my son has had bowel problems for 3 years. He's had a colonoscopy and biopsies done, which came back 'normal'. He's also had an MRI, Ultrasound and Endoscopy which all came back 'normal'. He then had a pill cam (Capsule Endoscopy) which came back with ulcers in the terminal ileium. So he got...

Hi there, my son has Crohn's in the terminal ileum, has anybody tried Pentasa and had remission with it, who has terminal ileum Crohn's? :)

Sorry to hear that, my son says hes ok til he eats then gets bad pains, i have ulcerative colitis and i have taken asacols for bout 20 years and havnt had a flare up for years, so hope your son gets on well with them, wish my son could take them the consultant says that they dont work when...

Hi Vonim, My son is 21 and has been diagnosed with crohns a couple of years ago, took bout a year to get diagnosed! He is hoping to start humeria soon, what mediation is your son taking? I am praying that he gets on ok with humeria as his lifes been on hold for last couple years! Cant help you...

My son had colonscopy,small bowel barium meal, mri scan all showed nothing, but his blood tests where abnormal, the only test that diagnosed his crohns was a pill cam, would be worth trying to get a pill cam done! Good luck!

Hi David, will diffently look into enteral nutrition, ive been reading up on it, will get my son to read all about it, thanks for the suggestion :)

Hi Jill, I dont know what biologic Scott will be trying got appointment in couple weeks just hope they will start him on them as soon as poss, he seems to be having a lot of pain lately, Sam

Hi Cat, Ive been on Asacol for bout 20 years with no side effects and no flare ups for years, i used to take 6 a day but for bout 10 years im down to only 2 a day! Also love your cat! lol Sam

Hi Joan, Thanks for your message, Lots to think about dont know if he will meet the NICE guidelines, weve got appointment end oct so will ask the consultant then x

Hi, my name is Sam, I'm 44 had ulcerative colitis for 24 years, haven't had a flare up for years, thanks to Asacol! It runs im my family; I had a aunt with ulcerative colitis, my sister has ulcerative coltis and unfortunetly she's allergic to all the medication so she has to take prednisolone...