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Crohn's Disease Forum

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  1. R

    Entyvio (Vedolizumab) Support Group

    Just want to thank those who are further along with entyvio and seeing results for continuing to post. Given how new the drug is the more information shared the better. I know that once you are feeling well the last thing you want to think about is this darn disease so thanks again for checking...
  2. R

    Entyvio (Vedolizumab) Support Group

    I have had four infusions and I am experiencing terrible rectal pain, swelling and bleeding. I haven't had these symptoms before Entyvio. I wonder if this drug causes that problem...hmmm....
  3. R

    Entyvio (Vedolizumab) Support Group

    Thank you Robrich. Makes me wonder if MTX on its own might do the trick (versus with the Entyvio). I saw that you had very long term success with remicade. That's encouraging as I have not tried that yet. I went straight to Entyvio for a variety of other health issues, but remicade is still an...
  4. R

    Entyvio (Vedolizumab) Support Group

    how long to stick with it and antibodies Hi All. I am new to the Forum and very excited to connect with everyone and learn more. I have a few questions: 1. I have had four infusions, with no noticeable improvement. My doctor is now recommending I stick it out for two more infusions over the...
  5. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    I will check out the cocobiotic. I had some homemade coconut yogurt in Key West - it was full of great probiotics and I felt wonderful. I tried to make it at home but it was a disaster and after three batches I gave up. Good to know re: dairy. Something to look forward to..maybe. Thanks for the...
  6. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    Thanks so much for the response to my post. I too am now following SCD, along with some insights from GAPs, taking probiotics, etc. I hear what you are saying re: medications and not completely discounting them. I do wonder about the risk of "low-level" inflammation, which I also think I have...
  7. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    No thanks. I am good too on the water front.
  8. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    Agreed. Let's end the bickering and agree to disagree. Someone asked about Jordan Rubin's approach and all I can say is that I tried it and it worked for me for a while and then when I went off the diet I got sick again. All the best....
  9. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    Look, show me a large-scale study of nutrition/supplement based approaches to either putting crohn's into remission or curing it, and I will jump for joy. If they do exist, they are small scale and few and far between. Believe me, I would love some scientific study of the methods I have been...
  10. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    Unhelpful Response I don't think your response to my post was very helpful. You are clearly an extremist. You seem to be rejecting anything that is not mainstream medicine in much the same way that others reject everything that is not alternative. Is that helpful to you and to the many others...
  11. R

    Your opinions on Jordan Rubin and Dr. Brasco's Guts and Glory book?

    I followed Rubin's guts and glory program to the letter except for one element, which I will describe in a moment. It put my crohn's in remission (I was not on any medication and when I started I had severe diarrehea and some pain). I should mention that for 3 months before I started I was on...
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