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Crohn's Disease Forum

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  1. 5

    My life with Crohn's

    Well, I went to my GI today, appt. was not as bad as I thought it would be. He said I could cut back on the Pentasa (he says it might be making my D worse). He showed me pictures from the capsule endo. and they weren't as bad as I thought they were gonna be, either. I also found out the my...
  2. 5

    Doc wants to do more surgery, advice please.

    Hi, Cal. I had 12 inches of my terminal ileum removed in 2007. I was in so much pain, I told my mom I wanted them to just shoot me. I have had three kids, and that was a breeze compared to the pain of a complete blockage. I went about 4 months trying the prednisone. My doctor called me his...
  3. 5

    Just diagnosed and feel very alone with it, need some help please.

    I was diagnosed with Crohn's disease 13 years ago, and I still have more questions than answers. I know exactly how you feel. I have to make my doctor give me certain tests, and getting an appointment takes an act of congress. My advice is to be a "squeaky wheel" It took me until this year...
  4. 5

    My life with Crohn's

    I recieved the results from the capsule endoscopy today, it said it showed "significant inflammatory response in the very distal portion of the small bowel, which is consistent with Crohn's disease." What does that mean? My doctor only said "I suspect the Humira will help control this". I...
  5. 5

    My life with Crohn's

    I have been on Humira for about 5 months. I will know the result of the capsule endoscopy Wednesday. My main symptoms now are cramping, diarrhea, and major bloating (feels like a stuck watermelon, sometimes). I am also SO TIRED!! My potassium was at 3.7 last week, so I can't blame the...
  6. 5

    My life with Crohn's

    In the middle of flare right now. Yes, I have had some terrible doctors. I have had Crohn's for 13 years, and I still don't really know what it is! The GI doctor I have now seems like he is so busy, I had to wait over a month to get it for an appt. and that was after I had my family doctor...
  7. 5

    My life with Crohn's

    Hi, I have been reading a lot of posts on the forum for months, and thought I should finally talk about my Crohn's.. I am a 36 year old mother of three daughters, diagnosed with Crohn's at 23. I was diagnosed with UC when I was 12. I had blood in my stools and severe depression. I was...
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