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Crohn's Disease Forum

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    Had 1st infusion need some advice

    This is great conversation.....I just spent 10 days in the hospital after suffering the worst flare up in my life. I have had crohns for 25 years and this was the first time being put in hospital. Wow, didn't realize I was so so sick. The decision was made to start Remicade.......After a...
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    47 and been fighting this stuff since 19

    Oh well, I am now on my 4th night in the hospital for the first time. Been on IV steroids now back on the pills. Not having the result I wished for. Now sending me home on more prednisone and changing meds from Asacol to maybe 6- mercaptopupine or possible remicade..... Wow, to see all the...
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    Steroids aren't working so great anymore :(

    I am currently on 60 mg of pred and not working.....go to GI tomorrow, hoping to try something new, maybe even IV steroids to stop the bleeding and mucos. I am so tired and fatigued all the time. Any suggestions from anyone?
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    Seriously... nothing?? again!!

    I am so feeling your pain......I have been diagnosed for 27 years and am fighting the worst of it now.....I know my body and I am fatigued, exhausted and down right no fun to be around. I am so ready for the GI to do something new.
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    47 and been fighting this stuff since 19

    Thanks guys, I have been increased to 60 mg prednisone and headed back to GI on Tuesday. I am ready for some relief. Bathroom visits 10 to 15 times per day, no energy, my color is awful and my family is very concerned. I own my own business and the daily stress from it is more than needed I'm...
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    Feeling very very low

    Hey Kimmie, I feel your pain...I have had Crohns for 27 years. I have highs and lows. Right now I am on a low. I have been having all the classic signs of crohns, the aggrevation and discomfort, but not much pain. I have been on Prednisone this time for a month and just increased two weeks...
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    47 and been fighting this stuff since 19

    Thanks Jes. This is a weird disease. For the most years I have been okay, but this attack is by far the worst. I am on 40mg Prednisone and take Asacol 3, 3 times daily. Usually 4 or 5 days on Pred I clear up, but it's been two weeks and no let up in sight. I fear what may come next but I...
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    47 and been fighting this stuff since 19

    I am new to the group and am looking for any encouragement and ideas to live a little more comfortably with this CD. I go months with no symptoms and wamo, it hits again, this time with a vengance and no letting up. Been back on Prednisone for two weeks and not helping this time. Usually...
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