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Crohn's Disease Forum

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  1. M

    Remicade Club Support Group

    I have infusion #2 on Thursday. The first went good and didn't notice a huge difference right after. Couple days later I noticed a slight difference in stomach pain. So hopefully it will keep getting better.
  2. M

    Remicade Club Support Group

    They gave me some print outs that's about it.
  3. M

    Remicade Club Support Group

    I received my first infusion today. So far no side effects except some drowsiness. I haven't noticed a difference in pain yet but we will see.
  4. M

    Remicade Club Support Group

    Hi am new to the forum and I get my very first infusion of Remicade next week. I'm kind of nervous. I hope this stuff works. It's a bitter sweet feeling of excited and nervous all at the same time today. Wish me luck!!
  5. M

    Hidden Crohn's

    Hi and Welcome, I have found this forum very helpful. I was going through hoops for 2 years before I was diagnosed with Crohns. My blood work my first colonoscopy, Endoscopy, x-rays, and the barium with small bowel follow through still didn't show crohns. Finally in October I had another...
  6. M

    New Treatment Plan

    Hello, I was diagnosed with Crohns in October 2011. The 2 years prior to being diagnosed I was on Prednisone twice 90 mg tapering for a sinus infection. That did not help my stomach at all. So when I was finally diagnosed the started me on Asacol 400mg 3x a day. That didn't help so he added 9mg...
  7. M

    Newly Diagnosed

    david, I have not been supplementing my Vitamin D like i should or my iron. I asked my dr. to check my B12 and i also meet with him Friday because the combination of Asacol and Entocort dont seem to be working. So we are going to discuss other options. I will keep posting as i know more
  8. M

    Newly Diagnosed

    David, 1. Is your doctor a gastroenterologist (GI)? Are you under the care of a GI? My primary is not, but I do have a GI that diagnosed me, although I don't get to see him very often. 2. The manufacturer suggested dosage of Entocort is 9mg. With your symptoms, I'm a little surprised that 9mg...
  9. M

    Newly Diagnosed

    Nope unfortunately I spent have my night in the bathroom.
  10. M

    Newly Diagnosed

    Jessi, I was on prednisone twice both times a quick tapper starting at 60 mg. I was on it for a chronic sinus infection and I did not notice a difference in my pain. I have been taking asocol and entocort for about 3 weeks and I thought it was working but now I'm getting pains back.
  11. M

    Newly Diagnosed

    Hello Everyone, I just want to start of by saying that some of the threads in this forum have helped me realize that I am not the only one to have gone through the hoops and hurdles trying to figure out what is going on. I have been dealing with digestive issues all my life. Although, it was...
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