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To k'smom: I was very worried about my first infusion too. I don't enjoy iv starts and that's the worst part of it. What I did was I brought a big purse full of treats that I can eat that I don't usually indulge in and snacked on those (my infusion was near lunch time). I sometimes bring my ipod...

Thanks everyone for the welcome. I'm really glad to have found this as where I live there are no local support groups for IBD specifically. @amssgirl - Thanks for the welcome. I really appreciate what you said. It made me feel like maybe I could help other people through this which I never have...

I started remicade June 2010. I had a great year, then a flare this summer after which they decided to increase my dosage. So far since my new dosage level 2 infusions ago, I was able to wean off prednisone (again) and am feeling pretty great. Remicade has given me 1 year and 4 months of relief...

I'm so sorry for what you're going through. It really sucks. I hope you get some answers and some good medical care soon. Try to remember this isn't your fault, it's so hard to not feel guilty when we can't meet our responsibilities but it really isn't your fault. Good luck and keep us posted. I...

It seems like a really long 20 years but I can sum it up in a few short sentences. First saw bleeding at the age of 12, asacol and prednisone used to control it, they couldn't help me after my daughter was born. Three hospitalizations in two years, iv nutrition, three picc lines, I'm starting to...

I can relate to this. Sometimes I have random dreams about the disease, other times I've gone a whole week with a disease-related nightmare every night. I wake up feeling like I am sick even though I am doing pretty well right now. I have contacted my health care provider and asked if there is a...