Search results

Thanks for that. It just seemed odd as I had never had it before, looks like I will have to stay indoors for a little bit. Does anyone know of anything that can sooth it? I am guessing something like camomile lotion maybe?

Hiya, I just wondered if anyone has noticed any reaction on their skin in the sun since being on azathioprine. I used to get prickly heat when I went abroad but this reaction is different. It is more like raised bumps or blisters all down my arms and hands. It looks similar to this -...

That's awesome new Joshuaa, I hope things keep going as they are :)

I am hoping to start this soon (well when they get my blood tests back and give me the all clear). Reading this is all really promising! I was starting to feel a bit down after going back on to steroids today but maybe there is some hope:)

Hiya, I have seen my consultant today and she has put me on Budesonide (I had bad reactions to pred) for 3 months. In the meantime she wants me to have a blood test to go on Azathioprine. She said something about testing enzymes but not really sure what she was on about. I am hoping these...

Just got back from the doctors. She said she thinks I need to go on immune system suppressants and B12 but that it's not in her remit to prescribe them so I should speak to my consultant about that. She did give me iron and folic acid tablets and some buscopan for the cramps and some sudacream...

Thanks for the advice :) I am hoping I will have some answers by the end of the week, my consultant is usually pretty good. I will let you know how I get on.

Hi All, I am just after a bit of advice. I was diagnosed Dec 2011 and became very steroid dependent so the consultant decided it was best for me to have my TI out. I had the operation in June and have been steadily recovering but things never actually got completely better. I am having some...

Thanks everyone for the responses they have been a huge help!! I will reply more fully when I get back on Monday and have my laptop again, rather than trying to do this on my phone lol I am going to stay with a friend this weekend in the hope that we can have a really fun weekend and it'll...

Thanks for sharing this, it was really inspiring. I go in next weds for a very similar op. They plan to remove about 20cms and give me the ileostomy to help me recover. I am kind of getting my head round it now and reading stories like yours really do help :)

@shamrock15 Thanks for sharing how yours went, it's really helpful to hear how other people coped to help put my mind at ease. I am glad that you are back on the mend and that the reversal was a success :)

@Terriernut Thanks :) It was a huge shock but it is finally sinking in I think and the forum is helping a lot actually. The plan is a temporary stoma but she did say that sometimes reversal isn't possible but that it's rare not to be able to do it. The nurse is coming over next Tuesday to mark...

Hiya, I had my pre op today for the resection I am having next week. When I saw the surgeon a few weeks ago he was a big vague with what they needed to do and said they would need to put an action plan together and look for a good window to do the surgery as I was on a high dose of steroids. I...

@cecilialynn I really hope that it all works out for you, I think finding the right balance of meds if half the battle. I went to see my doctor today and they have given me more medicines, I'm not sure if the names will be the same over there but they have told me to carry on reducing on the...

I was told something similar, the surgeon said to me that they needed to find a good window of opportunity when I had reduced enough on the steroids to operate. He said that being on a high dose of steroids could make things more complicated and result in a leakage post surgery.

Thanks for the replies :) @Grant - I hope that you are feeling a little better now after surgery not too long ago. I am anemic too so I've got some Iron tablets to take on top of everything else. I am trying to to get my hopes up too much that this will be a magic fix but I really hope it is. I...

Hi Everyone, This post is really about 2 things, I go in for surgery on the 20th June so I kind of want to get my feelings out about that but also about how I am feeling since reducing on steroids and to see if anyone has any advice. I have just reduced to 20mg of pred a day, going down by 5...

Thanks for the replies :) I am reducing on Pred at 5mgs a week. Thats the first tablet they put me on. I was out for a meal for my friends birthday and the chemist said I could drink, I had one vodka and coke and was really sick, so the first day didnt go too well. I started again once the...

Hey Everyone, I found out I had crohns on the 20th December I am on a cocktail of tablets at the minute and I am feeling really fed up. The doctor has just signed me off work for a week as the Pred is making me an insomniac. She aslo gave me some amitryptyline to take at night to help me sleep...

I know exactly how you feel :( Hi Stormy, I am having exactly the same enotions at the moment. I was diagnosed on the 20th December 2011 with crohns disease. I had been suffering for a while but didnt know what it is and when I mentioned it to my doctor he got me sent to a consultant who got...