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I too am doing lots of research and feel that there is protocol to follow that will be successful. I believe that diet plays a big part. Google Crohnsboy and Dr Dahlman from Ohio these are a couple of sites that have a common thread for success. I wish you lots of luck and hope you will find...

Glenda... actually they did do a study and there were patients that did get worse , prob. because of the immune uptake..when I fond out about this new med I was over the moon then I did many days of study and like I said even called and talked to the nurse for those studies…unfortunately they...

I have been reading your posts with great interest. My son just tried his first dose of 4.5 mg taken at night. He woke up at about 3 in the morning with bad abdominal pains. I thought it was a coincidence. Almost a week later he tried again but the result was the same. When you said that it made...

all good points Kev! I think all this time I have been a a little hell raiser the doctors actually said I should be dead!!! can you believe that? i think you make a good point about the scar tissue..on that subject I just what to shout out about these re-sects. for the over weight? one being my...

well after my surgeon said it had to coem out he back tracked I think its the insurance and he says its because my crohns keeps coming back and he doesn't want to talk more intestine but in the end thats exactly what they will have to do anyway! I wanted to get it done before it becomes an...

no with 6mp I was on it the 3 months and then developed an alrgeic reaction and they took me off, then Remicade created infection in my heart and CHF I still have a leaky valve so can't take large dose of predn. lest to much fluid builds up in my chest, the humira created mass infection within...

6mp gave me the rash and both the Biologics almost killed me so they are out :)

yes and about 10 CTs ahhhhhhh! but what they found in July was advanced with too many to count ulcers…the last time my intestines infiltrated my system there was just one..soo I am wondering what to do I wanted to have this removed via lap-scope and electively without the near death thing! you...

Kev thank you for your imput…I did do a ton a research even calling the U where the studies took place and actually they would like the patient to be off of other meds it s simple logic that if you are other meds then how do you know which is working or causing the problem perhaps in conjunction...

thank you for the wonderful energy and encouragement!

Oh my you have been through so much! I really don't know much about LDN, just what members here have posted and of course the studies done at Penn St. I'm sure someone will be by shortly that can better answers the questions you have. I do really hope you are able to find a treatment that will...

Thanks Clash actually I took a few days to study all the research and was thrilled! and even called the nurse for the doctor who initiated the study and She was leaving the University this is as of 2 months ago. But I did ask her about the study group and she said they were not doing it any...

can or has anyone tried this ..I have a bottle in my cabinet and I am afraid to use it..I have been near death a few times a tow of them were due to the meds Humira being one of them so I have tried everything..I had a recent colonoscpy and the dr said he didnt wnat to take on such a bad case...

right_O :voodoo:

thank you for that fabuous review now go tell the world how fabulous I am on my blog!!LOL! :heart: no really that was really coolio...

@ IC red: thank you so much for reading am I right or what....... this was one of my favorites, I am afraid my son in law to be was a designer for ED jeeze!!! he went to Pairs to work and when he got home he was laid off...well yeah!!!! I mean its at Marshalls!!!! a sad day my friend a sad...

I think we need to explore all the possibilities ...chocolate is simple..but when I think of all the things I used to be able to do ....WOW!!! dont dance anymore(my daughter took it up) achilles my right toe does not bend anymore transplant, LOL!!! OMG! no celery..jeeeze! no ice cream man!!! the...

COME ON you know you want to try them......LOL!!! Happy New year:kiss:

LOL oh that was years ago...I have many tales as well as scars and thank you for the compliment...what the hell are you doing in MASS>? I love it there and lived there for about a year while my friends went to music school...are you from across the pond? I get it I have problems with weird stuff...

.....yes? why cant you have chocolates.....what else gets you and I will share mine too.... on another note who has issues with, well everything my biggest was....HAHAAAAHAHAHAHAHAH!!! WTH I guess it would be prednisone for starters I didnt know how great I could look with a bolwing ball...