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  1. Catherine

    Flare or bacterial infection.

    No she has never been in biologic.
  2. Catherine

    Flare or bacterial infection.

    Quick update. She is well! Staying only on aza. Will do a quicker steroids taper calprotect is 18.
  3. Catherine

    Flare or bacterial infection.

    She had antibiotics for salmonella. Steroids for crohn flare and B12 injection. And blood tests for everything. She is well in herself and not likely her treatment options. She has a meeting with the gi team in a month. Calprotect 1200
  4. Catherine

    Flare or bacterial infection.

    It's Salmonella, flare and anaemia. She had iron infusion today and more blood taken. I am flying up on Friday
  5. Catherine

    VEO CROHN'S DISEASE

    Good luck with appointment. How long are you into your Crohn journey? I am not here much.. I have two children with IBD. The oldest has Crohns and has been dx 11 years and is now 27. She is in hospital FNQ with possible flare.
  6. Catherine

    VEO CROHN'S DISEASE

    J100, how did go with second opinion? I am also in Australia in Melbourne. If you are looking for a independent second opinion will need to see a private gi specialising in children interstate mostly likely in Melbourne. There lists are very long. They are a rare.
  7. Catherine

    Flare or bacterial infection.

    Sarah has been doing well since she resection a couple of years ago. She is currently living in FNQ. She has returned from a holiday in Bali and had food poisoning(other members of her group were sick as well). On her return she tested positive to covid. Last week she had 5 days of stomach...
  8. Catherine

    Sibling being evaluated

    Sorry to say but the calprotectin level is very high for only small bowel involvement. You need a urgent MRE.
  9. Catherine

    Digestive trouble since 2012

    Sorry you haven't had any responses. As i have got older my tolerance meat declined. My dx is IBS
  10. Catherine

    Fecal calprotectin test

    Suggest also requesting blood tests. I would get calprotectin are pain event. I would try a ibs diet like FODMAPs. This diet made my ibs much better. My daughter who was later dx with crohn's if anything it made her worse.
  11. Catherine

    Crohn's and PDA/High functioning autism

    My 24 year old daughter was dx with UC last year and she is high functioning aspergers. Her sisters has crohn's.
  12. Catherine

    Maybe joining the Crohns train again.

    All results have come back appointing to UC not Crohn's. Hemoglobin 11 and ferritin 23. All symptoms have resolved.
  13. Catherine

    Maybe joining the Crohns train again.

    She responding really well to medication. UC is behaviour is like it should with this medication. Still awaiting test results to confirm dx.
  14. Catherine

    recently disgnosed

    Hi, I am bumping the thread for you. Sorry you haven't received a response. I don't know the med but I do know under treated Crohn's can have very bad outcomes.
  15. Catherine

    First surgery panic

    My daughter the same age had similar surgery in May of last year. 60 cm small and 10 large bowel removed. The surgery put her into clinical remission. She takes a fibre supplement everyday. She seems very well.
  16. Catherine

    Frustrating disease

    The Aza dose seems low. My daughter highest dose of Aza was 150 mg aged 16 and about 50 kgs. There is also a blood test to check Aza levels.
  17. Catherine

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    Australian in going to do booster for everyone at 6 months after 2nd dose. Starting next month.
  18. Catherine

    Maybe joining the Crohns train again.

    Hi All, still taking it in. I think this will end up being Crohns. It come conversation today, that any children she had wouldn't stand a change. For background her partner has UC dx at 19, his father has severe UC. I believe from memory if you have a sibling with Crohns, chances of other...
  19. Catherine

    Maybe joining the Crohns train again.

    Colonscopy was today. The GI doesn't believe it crohn's disease, suspects Ulcerative colitis..
  20. Catherine

    Maybe joining the Crohns train again.

    GI visit was changed to a telephone call. Hemoglobin was 7.6 slightly better than our fear of 7. GI believe the iron infusion will increase hemoglobin by 1 a week. She was near the level where blood transfusion would be consider. He would like a avoid this in a young woman if possible due to...
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