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Poor baby girl. I will be praying that tomorrow will be better for both of you. I know the pain your feeling, I have been there. My daughter was diagnosed at 8. When my daughters bottom gets sore she uses A&D which seemes to help. Sorry, I'm still new at this. I thinks my dates are off.

Kimmidwife I read about LDN a while ago. It looks promising. Did your GI prescribe it? We are going to the GI soon to discuss other options.

Thank you Tesscorm and imaboveitall, The tube Jess had in the hospital was very fat. It was a tough time for her. She did have one put down her nose once checking for something a long time ago. It was much smaller than the one in the hospital. It's a good thing to keep in mind in case her meds...

imaboveitall Ok, I know about the ng tube. My daughter had it in the hospital, but it was for draining her stomach. I wonder if the ng tube your daughter uses it smaller than the one Jess had in the hospital. Jess would have a hard time with that. I give your daughter a lot of credit. That's...

imaboveitall, Sorry to hear that your daughter will be starting Humira. I feel there has got to be a better way. I keep praying. We may be switching from remicade to Humira soon. When you say formula feeds are you talking about the eternal nutrition?

Remicade worries Shansmom, I know exactly how you feel. My 14 year old daughter was diagnosed at 8years old. She started out on Asacol. After a bad flare she was put on 6mp (a pill). This too they say can have bad side effects.Jess was in remission for 2 years while on 6mp. Jessica ended up...

Dusty, I too am sorry to hear about your daughter and your son. You mentioned that your daughter is cutting out sugar. Have you read the book Reaching for Answers to Crohn's Disease by Martha Kalichman, R.N. Martha's daughter Sarah has CD. By reducing her sucrose intake and taking probiotics...

Thanks David, Thanks, I'll check it out.

LukeE THAT'S GREAT! They say that laughter is the best medicine. Wishing you well!!

Thank you!! Thank you for your supportive comments. I have only recently decided to join a forum because I was afraid of reading negative comments. I am happy that I found this forum because I see how informative and helpful it can be. The members seem very sincere and positive. I hope that...

Hi Luke, My 14 year old just faced surgery in March, 2011 for Crohn's. I know the fear as a parent. It's great that you may be able to get some income. That's a positive thing. Anything positive that you can think about, you should focus on. I have learned this from my daughter. I'll be...

Hi, My name is Denise. My daughter Jessica was diagnosed with Crohn's disease when she was 8. She is now 14. She has been hospitalized twice and had surgery once on her ilieum March, 2011. Her GI started her on Remicade after her surgery. Somehow in my gut I feel there is a better way than...