25 feb found out i have crohns

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Joined
Feb 29, 2012
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139
Hello.
My name is Neville and i live in Wales (uk) and i am 48 years old.

Not sure to start this as there is no real beginning, About six or seven years ago a started to get stomach craps on a daily basis, with this i use to also go through days where i would be feeling seriously hungry yet only after eating a few mouthfuls of food i would feel bloated and nauseated,

After a few months of this i went to the doctors and was tested for Helicobacter pylori which i was then treated for, obviously reading about H.P i wasn’t surprised when the pains came back a few weeks later and thought to myself that this is probably the start up of a stomach ulcer – no big deal so live with it and lay off the spicey foods.

This happened on and off for a year and a half and looking back at it i just found it a hindrance more than anything else and didn’t worry about it.
Then one day i received a phone call from my dad saying that he was having problems with my mother and he was at his wits end with her, after going over to there house i found my mother in bed faking that she was not in pain but obviously was and a pile of soiled clothes and bed covers,
i done no more than took her to the hospital where she become delirious and was as if she had senile dementia i.e. didn’t know who i was etc.

Well it turned out that she had diverticulitis and a serious infection of the bladder where a fistula had broken through from her intestines and into her bladder ( the infection was what made her like she had dementia ).
She had surgery to correct this but there was a complication and she ended up with peritonitis a few weeks later.

This time we were told by the hospital that it was extremely serious and that we should be prepared for the worse .
Lucky she pulled through it and made a full recovery.
Well after this she decided to more to Wales and that we ( my family) would also move to be there as required as both parents are in there 70`s.
This was five years ago and thinking back should have been a massive warning sign to me, but any ways the pains that i was getting were intermittent sometimes weeks apart sometimes days – but the pains were definatly getting stronger .

Sometimes this pain would drive me to bed for a day, usually on these episodes there would be sickness, other times a walk in the cold air was enough to shake of the feeling of being sick, each time i would thing – its only a stomach bug or indigestion or heartburn or well pretty much any thing that wasn’t serious ( if you haven’t guessed i have a huge fear of hospitals , needles etc and would happily sit there is huge amounts of pain and fob it off)

After 4 years of this, to be exact it was Wednesday 22 feb during the morning i again started to get the stomach ache and again i didn’t to anything about it, come about 18:00 i went to bed as the pain was pretty intense but what the hell –

Thursday morning i felt fine but after a hour or two again the pains come back even stronger and this time i was being sick even after swallowing saliva, come the afternoon the pain had reached the point where i was on the floor curled up grunting and panting through the pain, In the evening i asked my wife to call the doctor out, he came round and said that he thought it was pancreas infection and i would have to wait for a ambulance to take me to hospital.
Two hours passed and now the pain is indescribable – i would have happily jumped in front of a train just to stop the pain, my wife straight away called 999 and they come within 15 mins – taken to hospital plumbed into there etonox (gas and air) all the way to try and get relief from the pain,
on arriving i was now at the point where i was loosing all control of my temper shouting and kicking at doctors to stop the pain, well i was straight away put onto 4 lots of iv pain killers and was diagnosed with diverticulitis, after seeing the chief consultant he decided that it might actually be a serious food poisoning and i was put into isolation – something must of clicked with him as he then ordered me to get a ct scan and then a second one a hour later, anyways i fell asleep after.

i was then woken up by the consultant with a nurse and the door shut – strange i thought its going to be food poisoning – he said “ well Mr. tanner i have to inform you that you have a very serious case of Crohn`s disease – do you understand what this means” well me i am still high as a kite and i just shrugged it off.
The next day the consultant came back and explained it all
.... it sunk in ....
90% chance that i would have to surgery with in the next day or two due to a very serious infection in my intestines, i was put onto drip after drip of saline, antibiotics, pain killers, and a few other things that i cant even pronounce, luckily i was in the 10% and managed to recover without the surgery.

I came home on Monday and i have been put on METRONIDAZOLE (2 weeks) , PREDNISOLONE (2 months) , ASACOL (for ever), TRAMADOL (pain relief) until it all settles down then it will be what ever the specialist says when i get to see her (she will not get any arguments no matter how many needles i have to have).

Since then i have been reading everything i can find, i have started a diary where i record everything that goes into my mouth, have become ultra careful not to get a upset stomach, and try to stop my wife and kids from panicking every time i get a bit of pain.
Already realise coffee is not good and neither are a few other things so the diary is paying off already.
One thing i would like to say .. don’t self diagnose a pain – get it checked out !
 
Hello nevilletanner,

I am truly sorry to hear about your struggles. I am happy to hear your recovered recently without having to have surgery. I have lived with Crohns since I was 16 and at almost 36 I must say it's a nasty situation.

Try to keep your head up.

I am not very good at this stuff so I will just move on and say Welcome...I have only been on here a few weeks, but the support and information is fantastic, and the administrator's are very protective of everyone on here.

Take care and keep your chin up.

Jessie_76
 
Hello Neville and welcome to the forum, you have definetly come to the right place to get lots of helpful info and support :) I am pleased to see that you are keepng a food diary, definetly check out our diet and sups forum to get ideas on what else to look at.

Med wise the pred should get any inflammation under control pretty quick, did you get a prescribed a calcium supplement to take whilst on this? If not pls ask our doc about it as you need to be on something to help protect your bones. I would also say a your next appt ask about having your vitamin levels checked such as B12, D and Folate as it is common for us chronies to be dificient in these and can lead to symptoms like fatigue.

I will leave it at that for now and will keep fingers crossed that you feel better soon. Keep us updated on how things go :hug:
 
Hiya Neville
and welcome

Poor you, been there, done that!
You're on some good meds there Nev, you'll be feeling on top of the World in no time!
Rest and let the Pred do it's magic, any questions, just shout, we're all here for you
lotsa luv
Joan xxx
 
thx for all the comments . i have picked up on a few things while exploring the forum and from the comments on here.

i have read about the long term use of steroids and there affect on calcium levels but what is LONG TERM ?

yesterday at the doctors to hand in medical notes from the hospital i asked many questions and was given a lot more supplies of meds and new directions for the PREDNISOLONE -
the hospital consultant said 30mg a day for 2 weeks , then 20mg for 2 weeks, then see a doctor.
doctor said the same but to carry on at 20mg a day till i run out and then go back and see him, that would be ( 250/4 = 60 days ) that to me sounds a bit overkill and stupid expecially when nothing was said about calcium !!

funny saying that above as i have been hammering the milk and have a craving for fortified milk drinks ! is this my body telling me the same ?

i am really not sure if i trust my doctor - cant wait to see the specialist to see whats right and wrong. must admit im not to happy now.

ragards N
 
welcome nevilletanner.. good luck with all your meds and all.. you will find alot of good information on this forum. Sometimes milk products can bother people that have crohn's.. IBS..etc... Def keep the food diary;i have encouraged my daughter to do that; it helps to know what may cause your pain or flare ups.
we have found that vitamins and supplements have really helped my daughter...Omega 3; Boswellia.. Isotonix vitamins and a product OPC3... look for things that are anti inflammatory .. take care
 
I go the the doctors to discuss the prednisolone. My daughter is on prednisolone 30mg (2.5 weeks), then 25 mg (1 week) and started on 20mg (yesterday). She is also on 2 weekly visits to her G.I.
 

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