Hi,
We have 3 in our immediate family with Crohns - my husband, our daughter and son. Also, my husband's mother has Crohns. She is on Remicade and Prednisone. My husband has been in remission and off of meds for 20 years. He is very aware of what foods bother him and stays away from them. He can only tolerate certain brands of bottled water. But he loves salad and meat for dinner. Our daughter was diagnosed 3 years ago and doesn't like the side effect of the meds - Pentasa and Metronidazol - so she doesn't take them and just feels bad all the time. Our son was diagnosed shortly before his 17th birthday and has an anal fistula. He has been on Pentasa, Metronidazol and Omeprazol. Imuran didn't work. They recently put him on Prednisone and Asacol. He is scheduled to start Remicade soon, but is feeling better lately and finally has an appetite and is eating. He doesn't want to take the Remicade, and we're not sure we want him to either. If he has to be on it for life - He will rack up over $1 million in insurance bills in a little over 30 years - based on estimated Remicade treatments of $5000 each, and probably future prescriptions, not to mention routine medical tests.
Our son wants to be a doctor and had hoped to become a Dr. in the Air Force - but with active Crohns - I don't think that's an option. Although the Doctor is hoping to get him totally off meds except for Remicade and told us he could possibly take a treatment before basic training and one when he gets out of basic training. Could that possibly happen??
Looking for information on breakdown of costs for Remicade. They say we have to drive 3 and 1/2 hours to take treatments at the Infusion Suite in the Hospital. We live in a rural area. I would like to order Remicade from our pharmacist here in town and bring it to the local hospital to have it administered. Anyone have any luck with that? Our local pharmacist says it's about $800 per vial and our son needs 3 vials - He weighs only 130 pounds.
So "HI" to all. Any information would be appreciated.
We have 3 in our immediate family with Crohns - my husband, our daughter and son. Also, my husband's mother has Crohns. She is on Remicade and Prednisone. My husband has been in remission and off of meds for 20 years. He is very aware of what foods bother him and stays away from them. He can only tolerate certain brands of bottled water. But he loves salad and meat for dinner. Our daughter was diagnosed 3 years ago and doesn't like the side effect of the meds - Pentasa and Metronidazol - so she doesn't take them and just feels bad all the time. Our son was diagnosed shortly before his 17th birthday and has an anal fistula. He has been on Pentasa, Metronidazol and Omeprazol. Imuran didn't work. They recently put him on Prednisone and Asacol. He is scheduled to start Remicade soon, but is feeling better lately and finally has an appetite and is eating. He doesn't want to take the Remicade, and we're not sure we want him to either. If he has to be on it for life - He will rack up over $1 million in insurance bills in a little over 30 years - based on estimated Remicade treatments of $5000 each, and probably future prescriptions, not to mention routine medical tests.
Our son wants to be a doctor and had hoped to become a Dr. in the Air Force - but with active Crohns - I don't think that's an option. Although the Doctor is hoping to get him totally off meds except for Remicade and told us he could possibly take a treatment before basic training and one when he gets out of basic training. Could that possibly happen??
Looking for information on breakdown of costs for Remicade. They say we have to drive 3 and 1/2 hours to take treatments at the Infusion Suite in the Hospital. We live in a rural area. I would like to order Remicade from our pharmacist here in town and bring it to the local hospital to have it administered. Anyone have any luck with that? Our local pharmacist says it's about $800 per vial and our son needs 3 vials - He weighs only 130 pounds.
So "HI" to all. Any information would be appreciated.