Here's a good one. I am in the process of being diagnosed with Sarcoidosis.
I've had low WBC counts that would correct themselves over a few months for the past 4 years or so, no symptoms otr sickness.. After my son got the Crohns diagnosis I decided to get a checkup. Low WBC's again, around 2.7, so back to the hemotologist for the first time in 3.5 years (last time they took 7 vials of blood for tests, was in 2018). I told him L's story, and he said lets check for some autoimmune markers. My ACE came back high, 85 I believe. The sent me to a pulmonologist, who ordered a catscan.
Enlarged lymph nodes in my lung/chest, and some inflammation in my lungs. Now, they want to do a biopsy to rule out lymphoma. Then seem fairly certain its sarcoidosis. I'm pretty my floored. I work out 4 days a week, do 50-100 pullups a day, never been sick. Not that any of that really matters, but this is beyond frustrating and depressing. In the past 12 months my dad died of covid, son was diagnosed with IBD, and now best case I have sarcoidosis. If they tell I have lymphoma, I am not sure how I am going to be able to mentally absorb that.
Now I had my catscan 2 weeks after my covid booster and 3 weeks after my flu shot, so not sure if that may have contributed to the lymph node inflammation. I also told them I am under unimaginable stress. The plan is to do the biopsy and then put me on 3 months of 10mg prednisone to get the inflammation down. They say with Sarcoidosis it can burn itself out and go away on its own, but it can also impact other organs.
I really really dont want to go on steroids for 3 months...
