- Joined
- Jun 11, 2012
- Messages
- 3
I'm sharing my story because it helped me so much to see others on this forum fighting the same battles I was, and not giving up hope. It helps so much to know you're not alone in a fight...
I've been battling Crohn's the better part of 10 years. After unsuccessful results from all of the "wimpy" drugs, 2 years into my official diagnosis Remicade proved the miracle cure for me. However, a few years later (3 days after returning from my honeymoon) I had a severe reaction during an in-home Remicade infusion. My body had developed antibodies against the one drug that worked. My husband and I were already testing our vows "through sickness and in health!"
I immediately tried Humira, even a double dose, but still no relief over the next few years.
Despite the ever-present Crohn's symptoms, I was able to conceive in July 2009, and was in remission during a wonderful, healthy pregnancy. I stayed on the Humira throughout pregnancy, which I worried about, but my son was born, and at 2 now is still, incredibly healthy.
In October 2011 I had a small bowel resection, and it seemed that my Crohn's got WORSE after surgery. I felt so defeated after going through such an invasive surgery and grueling recovery period, and not seeing the "miracle" results my husband and I hoped so much for.
I started on Cimzia shortly after surgery, but it didn't seem to give any relief. A colonoscopy in January 2012 showed the Crohn's was back.
To add insult to injury, a routine eye exam showed the prolonged steroid use was my prime suspect for the beginning stages of Glaucoma.
In April 2012, a negligent doctor gave me Keflex for a sinus infection, spiralling me into a horrible flare, and eventually landing me in the hospital. Unfortunately, I also miscarried as a result of the flare. I was so devastated that this disease would take away my choice to grow my family.
Following that last flare and the miscarriage, I skeptically started on a double dose of Cimzia - one shot (given by my loving husband) every week. A few months later, I was feeling great (gaining weight and energy), I was pregnant again!, and this time, 3 months in now, everything is looking great.
Please don't lose hope. I thought I was going to, but now I have so much to be thankful for
I've been battling Crohn's the better part of 10 years. After unsuccessful results from all of the "wimpy" drugs, 2 years into my official diagnosis Remicade proved the miracle cure for me. However, a few years later (3 days after returning from my honeymoon) I had a severe reaction during an in-home Remicade infusion. My body had developed antibodies against the one drug that worked. My husband and I were already testing our vows "through sickness and in health!"
I immediately tried Humira, even a double dose, but still no relief over the next few years.
Despite the ever-present Crohn's symptoms, I was able to conceive in July 2009, and was in remission during a wonderful, healthy pregnancy. I stayed on the Humira throughout pregnancy, which I worried about, but my son was born, and at 2 now is still, incredibly healthy.
In October 2011 I had a small bowel resection, and it seemed that my Crohn's got WORSE after surgery. I felt so defeated after going through such an invasive surgery and grueling recovery period, and not seeing the "miracle" results my husband and I hoped so much for.
I started on Cimzia shortly after surgery, but it didn't seem to give any relief. A colonoscopy in January 2012 showed the Crohn's was back.
To add insult to injury, a routine eye exam showed the prolonged steroid use was my prime suspect for the beginning stages of Glaucoma.
In April 2012, a negligent doctor gave me Keflex for a sinus infection, spiralling me into a horrible flare, and eventually landing me in the hospital. Unfortunately, I also miscarried as a result of the flare. I was so devastated that this disease would take away my choice to grow my family.
Following that last flare and the miscarriage, I skeptically started on a double dose of Cimzia - one shot (given by my loving husband) every week. A few months later, I was feeling great (gaining weight and energy), I was pregnant again!, and this time, 3 months in now, everything is looking great.
Please don't lose hope. I thought I was going to, but now I have so much to be thankful for
