So some of you will know my story and general history on this site as being diagnosed with Crohns of the TI.
Earlier in may this year i got quite ill and had to go into hospital. So i got very ill and they eventually decided to remove my appendix as everything else was clear. Anyhow They got a surprise when they went in as they couldn't find my appendix and most of my lower bowel and adjoining organs where covered in scar tissue /Adhesions. After a bit of cutting this away they eventually found my appendix around the back of my bowel growing upward. This is a called a Retro cecal appendix and is rare . The appendix had ruptured and was leaking into my abdomen and thus causing me to very very ill. So it was removed and I was cleaned up . The surgeon told me that I was very lucky and it was a complicated surgery.
A week later they told me that there was no evidence of Crohn's and no explanation for the mass of adhesions . I was also told that a lot of the adhesion where very dense and couldn't be removed at that time.
So three weeks went by and i never felt better, no more running to the toilet and all of my old symptom where fading away . I couldn't believe how could i felt and this may be over.
Week four and the pains started .I went back to my GP and was immediatly sent to hospital . The faffed about and took and xray then with no info sent me home. The pained came on and off for another week and back to hospital. A different set of doctors sent me for an Ultrasound and seen nothing and sent me home still in pain.
Its now four months since my operation. My pain is with me daily and i am meeting the surgeon who did my operation tomorrow in a private clinic.
A, I want him to sort this out .
B, i want transparency in what is happening with my information when im sent to hospital.
C, I know i need another operation to remove this dense scar tissue before in causes a blockage or stop other organs functioning .
D, apparently 90% of all patients who have abdominal surgery have adhesion post op. Why is this being ignored or never mentioned when I go to the hospital in pain.
I have read a good few case studies on this subject so i wont be lied to at the meeting with the surgeon. I am aware of the positives and negatives or more surgery. This is only four months and im in agony ,to the point I cant sit driving in my car for more than about ten minutes.
Has anybody here ever been told that their pain is caused by adhesions and not IBS or IBD ?
I m asking because i need had any previous surgery and i have multiple adhesions, not once over the last five years has any doctor ever mentioned this.
Earlier in may this year i got quite ill and had to go into hospital. So i got very ill and they eventually decided to remove my appendix as everything else was clear. Anyhow They got a surprise when they went in as they couldn't find my appendix and most of my lower bowel and adjoining organs where covered in scar tissue /Adhesions. After a bit of cutting this away they eventually found my appendix around the back of my bowel growing upward. This is a called a Retro cecal appendix and is rare . The appendix had ruptured and was leaking into my abdomen and thus causing me to very very ill. So it was removed and I was cleaned up . The surgeon told me that I was very lucky and it was a complicated surgery.
A week later they told me that there was no evidence of Crohn's and no explanation for the mass of adhesions . I was also told that a lot of the adhesion where very dense and couldn't be removed at that time.
So three weeks went by and i never felt better, no more running to the toilet and all of my old symptom where fading away . I couldn't believe how could i felt and this may be over.
Week four and the pains started .I went back to my GP and was immediatly sent to hospital . The faffed about and took and xray then with no info sent me home. The pained came on and off for another week and back to hospital. A different set of doctors sent me for an Ultrasound and seen nothing and sent me home still in pain.
Its now four months since my operation. My pain is with me daily and i am meeting the surgeon who did my operation tomorrow in a private clinic.
A, I want him to sort this out .
B, i want transparency in what is happening with my information when im sent to hospital.
C, I know i need another operation to remove this dense scar tissue before in causes a blockage or stop other organs functioning .
D, apparently 90% of all patients who have abdominal surgery have adhesion post op. Why is this being ignored or never mentioned when I go to the hospital in pain.
I have read a good few case studies on this subject so i wont be lied to at the meeting with the surgeon. I am aware of the positives and negatives or more surgery. This is only four months and im in agony ,to the point I cant sit driving in my car for more than about ten minutes.
Has anybody here ever been told that their pain is caused by adhesions and not IBS or IBD ?
I m asking because i need had any previous surgery and i have multiple adhesions, not once over the last five years has any doctor ever mentioned this.
