advice pre-consultant visit
Ok, as some of you will have read, I've been causing the doctors trouble!!
We know I have Crohns, we know pentasa and steroids now don't work for me anymore.
The consultant suggests the current state of ridiculous pain, nausea, vomiting, weight loss (17kg in 6 weeks), bleeding and mucus is due to IBS not Crohns because my MRI and bloods came back normal.
I have dutifully taken the IBS meds he prescribed. No change. I am sleeping better due to amitriptalinie (?sp) but thats about it.
I'm going to ask for a colonoscopy as I've only had flexisig before now.
I'm going to request to try Crohns meds too. But which ones? He can't give me biologicals because the NICE guidelines won't allow . . . any suggestions on what might work? At this point, I'm prepared to try anything!!
Ok, as some of you will have read, I've been causing the doctors trouble!!
We know I have Crohns, we know pentasa and steroids now don't work for me anymore.
The consultant suggests the current state of ridiculous pain, nausea, vomiting, weight loss (17kg in 6 weeks), bleeding and mucus is due to IBS not Crohns because my MRI and bloods came back normal.
I have dutifully taken the IBS meds he prescribed. No change. I am sleeping better due to amitriptalinie (?sp) but thats about it.
I'm going to ask for a colonoscopy as I've only had flexisig before now.
I'm going to request to try Crohns meds too. But which ones? He can't give me biologicals because the NICE guidelines won't allow . . . any suggestions on what might work? At this point, I'm prepared to try anything!!