All I can handle

[poopaholic]

I realize in this world we live in, if you think you have it bad all you have to do is look over your shoulder. I know some of you are a lot worse than me, but i am struggling everyday. First off, I get all my treatment at the veterans hospital in st.Louis. They had me on cimzia for a year. My health steadily diminished. Finally had all I could handle and told doctor we must make a change. He was aware that i have a stricture where my my last ilium restriction was done. He admitted me for surgery and to switch to Humira and prednisone. After being admitted they gave me a mri, and an upper scope. It showed I have multiply strictures in the small bowel. After a 12 day stay, they sent me home on a liquid diet, steroids and the date of july 24th for resection of the main stricture and strictureplasty for the undetermined stricture of the small bowel, about 3 weeks that amount of time to wait was devastating. Believe me everyday is a struggle I want to eat so bad, but the repercussions are terrible. I was on my final days of waiting, when the VA called me and rescheduled my surgery for Aug. 28th. I am struggling with the liquid diet. They gave me boost breeze with no fat ( cant seem to handle any fat with out pain) now I have terrible heart burn I believe from the boost. I take omeprazole 20mg first thing every morning. I think I may be getting dehydrated my urine is starting to get really dark. When I experience this pain and discomfort even water seems to magnify it. Monday I will call and see if i can at least come in for blood work. Anyway I didn't really need anything just wanted to put my struggles out there. Thank you all for being here.

 

[Perfer]

I hope things get better for you, it sounds like a very difficult situation you are in. Hang in there mate!

 

[NancyHany]

I'm so sorry for what you are going through, I wish your next surgery to be your last one. Make sure you have your vitamins levels checked and to take your supplements. Stay strong.

 

[SdN]

If you think you're getting dehydrated go in and see if they will give you an IV drip. Being deyhdrated is very dangerous and it should be a simple thing for them to give you a bag or 2 or solution. That should help you for at least a few days. I'm a fellow veteran keep us updated on how you're doing!

 

[poopaholic]

Well I went to er yesterday. They admitted me. Said I have pancreatitis gall bladder and liver problems. Said it is not a stone. They won't to get me back on liquids and send me home to await surgery. It the end of august, I don't know how to put my life on hold even longer, and deal with this crap. thank you all for your responces

 

[SdN]

That's a lot of news to get all at once, how are you handling it?

 

[scoutfinch]

You are right that there is always someone out there who has it worse off than yourself. However, that doesn't mean you can't complain or feel self-pity, especially given the situation you've described. I truly hope you can find some relief from your recent suffering. :ghug:

 

[poopaholic]

Well I'm starting to feel better no longer need the morphine. Hopefully start the liquid diet again. I am so ready to get on with my life, my problems started last Christmas and have built from there. This whole year will be a wash. I'm hopeing next year will be better I tell you this crohns crap sucks. Thank you all for you replies.

 

[CLynn]

Sorry it's been so difficult for you lately. Sending mental hugs to you!

 

[SdN]

poopaholic, you're fully entitled to your vent. To say dealing with what you've gone through is tough would be an understatement.