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mary j

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Hi to everyone! I have a few questions for you (sorry, this got to be long)--

I'm not diagnosed with Crohn's, although I've had some GI problems over the years. I'm 55 (OMG!), T1 diabetic, etc, etc. Several times over the past 20-30 years I've gone thru periods where I had abdominal pain (usually right-sided), could not tolerate eating and would lose weight, like at least 10lbs in a couple weeks. My general docs would prescribe antacids--such as zantac, etc. After a month or two, things would get better, I'd gain back the weight and I would go on my merry way. About 4 years ago, I had a bowel obstruction (I was unaware! perhaps because of diabetes?) and finally went to my internist who immediately sent me for a CT scan. The scan showed a mass in the ilieocecal area, which turned out to be an intussusception, which resolved upon further GI testing. Upon having a colonoscopy at that time, there were documented lesions in the area of the ileocecum. A later scope showed healing of the areas. The test stated "rule out Crohn's", but it never was really dealt with.

After experiencing this obstruction, I realized that this was probably the same thing experienced in earlier years, because the symptoms were basically the same--inability to eat, loss of weight, feeling that food just would NOT pass through (that's why I quit eating).

About 10 years ago, when I experienced these same symptoms, I also had VERY STRONG ketones on my breath & urine, which was at the time though to have been from diabetes. But I still have my doubts, because my blood sugars weren't so out of whack that I would have expected ketones.

Has anyone here experienced periods of ketosis from Crohn's disease, possibly from the inflammation and lack of being able to properly digest foods? The people at work could smell the strong acetone:confused2: through my mask (I work in surgery).

I'm at my wits end, I also have other "allergy" problems related to digestion and feel miserable much of the time from this. I'd really love to get some answers, but I haven't had much cooperation from doctors.

Mary
 
Hi Mary and welcome to the forum. I empathise with you and wish I could help but unfortunately, everyones symptoms differ. I haven't had the periods of ketosis that you describe but I do have mouth ulcers quite often and discolouration on the back of my tongue which won't go no matter how much brushing I do. I hope you get some answers too. If you're not happy with the advice your doc has given you, ask for a second opinion and ask for more investigations, its the only way you'll get to the bottom of this.

Ruth
 
Mary,

I can not be of much help I am afraid. Description of the pain on the right side and the obstruction made me think Crohn's, but if that is ruled out I do not have any other clues (even based on your other symptoms). I apologize for this, and recommend finding other doctors for second/third opinions as they may be willing to try or do different things.
 

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