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Hi Crohn2357,


Side effects for me are:

- a tan, although it 's not that strong at the moment even though I've been on anti-MAP for several years

- small amount of [wiki2="Arthralgia"]arthralgia[/wiki2] for the first 6 months, but barely noticeable

- itchiness in my groin, which went away after a while or I used some cream to get rid of it, sometimes it reoccurred but hasn't for ages

- they talk about a metallic taste in the mouth. I had this slightly but I only noticed it when my mouth was very dry. I would have a drink of water and it went away. This also seems to have disappeared.


That's it. All the side effects were very minimal and were absolutely nothing compared to the disease.


There are apparently some serious side effects associated with the medications but they are rare.


Have a listen to the 9-part Borody interview I refer to, he talks about patients' side effects in more detail. All the best :)



Hi Rollinstone,


Thanks for the feedback. I currently have about 4 loose stools per day. I think they refer to it as 'partial remission??'. Urgency is not perfect but more than manageable. I eat whatever I like and feel fantastic. My latest [wiki2="Colonoscopy"]colonoscopy[/wiki2] still showed signs of Crohn's but my bowel has healed dramatically as you can see from the video. My iron and Vitamin D levels still drop slowly over time and I just need to watch these a little bit.


Thanks,

Phil


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