Anyone know anything about TSO . . ready to take worms . . . ?

[lovetotravel]

anyone know anything about TSO . . ready to take worms . . . ?

Hi there,

I have read the old threads about TSO and Ovamed etc etc ( a year or 2 old). I still have not found anything where someone has actually tried the stuff. I want to know/hear from someone who has taken it.

I heard about it from a family friend who is a Dr. and took it to my GI who has heard about it and gave me a website/brochure. I have looked at it and it looks promising but it is very pricey ( and brochure is produced by company selling it!). I figure rather than have surgery, which is an option right now, I should try this stuff first.

I have had to be off work and then go back part time because of CD and so I figure if I am healthy on this stuff then it is worth it, as I can work full time again.

I am vegetarian and while the prospect of eating worms eggs is gross, I would eat the suckers live right now to get some relief.

My GI gave me a patient of his email address and I got a reply from her just today telling me her story and it seems that she is having sucess with the worms. So I am thinking of trying it and I will keep you guys posted.

Just wanted to see if anyone has heard anything bad about this stuff before I fork out the thousands of Euros!

Thanks H

 

[Colt]

I've never even heard of parasites for autoimmune diseases before. I'll have to read up on it but I don't think I'd even consider it if I was facing surgery.

Worm infestations alone are problematic. Whipworms drain your blood like leeches and can even kill you. On top of that they can congest your intestines and many other things. Plus while they say infecting other people is 'improbable' there's still a significant chance of you starting a whipworm epidemic in your area.

 

[Op.28/18]

Because I was a patient of one of the doctors, Robert Summers, involved in the clinical study that supposedly supports their use, knowing how easily he dismisses side effects, it's not something I'd risk trying. He claims worm therapy is safe. Well, he also repeatedly denied Imuran's risk of leukemia, lymphoma, and skin cancer to me. (Because I wasn't told about such risks when I was put on it, thinking it was safe, when I found out about these risks, I was very concerned.) Even common side effects of prednisone he denied, acting like it was essentially a side effect-free drug.

I remember reading about doctors at the Mayo Clinic who were criticizing the Iowa researchers for so casually claiming worm therapy to be safe and effective. I also remember reading a proponent of worm therapy who said, paraphrasing: "Of course worm therapy is safe. People in third world countries run around with worms inside themselves all day long." But, I mean, I don't think people usually hold up people living in third world countries as paragons of health.

Have you tried LDN? I'd try that before worms. Worm therapy strikes me as pure quackery, just a scam for greedy doctors to make even more money off vulnerable patients whom they care nothing about. Until worm therapy, I had never heard of worms being so expensive.

 

[lovetotravel]

Op.28/18 and colt,

Thanks for the info. I had not heard of LDN till today (saw it in a previous thread) and have some reading up to do. It seems like the sample of 17 patients was pretty small for Crohn's in the link you sent. Also7 of 17 had sleep troubles. Are there any other side effects?

Is anyone from the forum on it? I'd love to hear from them.

As I understand it, the TSO is/are unable to reproduce, and also realises we are not pigs and leaves our systems within 2-3 weeks (reason for having to take more and ofcourse great for Pharm company selling it as you have to buy more!)
I do agree that these are pretty pricey worms. I wonder if i went to a pig farm and licked a pig if it would be the same ! he hee who knows what I'd pick up then!
H

 

[BWS1982]

All I know is the theory behind them, acts like a heatseeker finding a decoy/flare instead of the fighter jet. The immune system thusly has a new target and stops mutilating the intestines (which it should not being doing the first *&#@%#^ place!!!!!)

 

[lovetotravel]

Thanks everyone, I am looking into the LDN and will mention it to my GI, when I next see him.

Benson, I read your other posts and my heart goes out to you. I hope all this gets sorted out soon.

My GI says that the TSO causes your body to react to the worms with an inflamitory response, which is what helps the crohn's. The only person I have heard of that is on it has taken it for 2 years with no side effects and says it has changed her life. My husband says maybe we dont hear anything about it from people who have taken it as they are no longer as sick. This lady sees my GI ONCE a year. I just about fell over when I read that in her email. sometimes I see mine weekly!

Who knows, I figure worm eggs cant be worse than the other "poison" I have been made to take. If it was cheaper I would be on it right now.

I have a good feeling about it, dont know why, so maybe I can be the guinea pig for the forum! he hee I will let you know what I decide, My GI is away on vacation now and I need a letter from him saying that I am taking TSO under his supervision. So I wait.

 

[lovetotravel]

PS. Pen. . . I am new to this forum thing and at the risk of sounding like a techno-peasant . . . how do I find Kev's blog?

I looked up the quitting smoking thread but did not find anything on LDN there? Is that what you mean? the thread?

thank you
H

 

[lovetotravel]

thanks pen, I just figured it out on my own and came here to delete this question. duh! you are too speedy! thanks for the help!
H

 

[Colt]

Op.28/18 and colt,
As I understand it, the TSO is/are unable to reproduce, and also realises we are not pigs and leaves our systems within 2-3 weeks (reason for having to take more and ofcourse great for Pharm company selling it as you have to buy more!)
H

The worms do not reproduce inside your intestines. They lay eggs that are put out into your feces. That means you can reinfect yourself or anyone/anything that has contact with your feces. While that may sound like an 'improbable' way to spread the disease most diseases are spread by human feces. You get tiny amounts on your hands when you wipe your butt and then you go and touch other things like your mouth or your kid's food. You also leave those eggs on and in the toilet. Oh, and there are eggs on your underwear.

 

[Colt]

THAT was too much information? You haven't read many of my posts, have you? Maybe I should get some pictures to illustrate...

 

[Colt]

Here we go:

Notice the possibility of them spreading to your other organs (especially if you're a crohnie with a fistula)

Here's what happens when those whipworms you're taking grow too high in numbers.

Whipworms embed deeply into the intestinal walls. I just don't see how that does anything other than major damage to them.

The entire concept of putting something into the body for the body to attack other than itself is ludicrous. The immune system doesn't work that way. It does not specifically target things and definitely not one thing instead of another in the same tissue.

It's going to respond to having worms burrowed into your intestinal walls by (as they acknowledge) inflaming the intestinal walls and generally ripping them apart exactly in the way they are already doing via crohn's disease. It would just give you the same symptoms (and some extra risks like intestinal blockage and spread to other organs) even if you would otherwise be in remission. Your body is already acting like it's got a whipworm infection. Giving it a whipworm infection isn't going to change it's mind about being infected.

All you can possibly do is make your symptoms worse. If you have an infected leg and an infected arm your body does not go for one and then the other. It just increases the immune response even more and you end up with a 105 degree fever instead of a 104 degree fever.

 

[Op.28/18]

It's going to respond to having worms burrowed into your intestinal walls by (as they acknowledge) inflaming the intestinal walls and generally ripping them apart exactly in the way they are already doing via crohn's disease. It would just give you the same symptoms (and some extra risks like intestinal blockage and spread to other organs) even if you would otherwise be in remission. Your body is already acting like it's got a whipworm infection. Giving it a whipworm infection isn't going to change it's mind about being infected.

All you can possibly do is make your symptoms worse. If you have an infected leg and an infected arm your body does not go for one and then the other. It just increases the immune response even more and you end up with a 105 degree fever instead of a 104 degree fever.

Yeah, I think you're right. Before I found out Robert "Bobby" Summers--one of the guys who thinks eating worms is a great idea--was telling me such nonsense--that Imuran doesn't carry a risk of cancer, that pretty much all of the side effects I was experiencing were caused by my disease, that the few side effects which he acknowledged, he said not to do anything about them--pred, he acknowledged, was giving me cystic acne, for example; but when I asked for a prescription or a referral to a dermatologist, he said just not to do anything and it would go away--it didn't, and it left scars on my face--I was more interested in this worm therapy idea and was reading people's experiences with it on Ovamed's discussion forms. Quite often what you predict--that people's symptoms would get worse, that they would get a fever, etc.--is exactly what would happen. Interestingly, such posts almost always seemed to quickly disappear.

 

[SB6286]

Colt to be totally honest...... that was @%!&*#$ gross!!!! Now you got me freaked out lol.

 

[Op.28/18]

Hi there,

I have read the old threads about TSO and Ovamed etc etc ( a year or 2 old). I still have not found anything where someone has actually tried the stuff. I want to know/hear from someone who has taken it.

On another thread, there's a poster who says he/she took worms and they had no effect whatsoever.

Just a side note for what it's worth other things i tried that did not work:

Whipworm eggs (cost me over $5000 for 6+months imported it from Germany no results or even slight effect from it whatsoever)

 

[Op.28/18]

Questioner:
What can you tell me about the use of whipworms and the treatment of Crohn’s disease?

Dr. Abreu:
Whipworm eggs: You can buy them on line for a lot of money. You know where they get it? They purify pig worm eggs from stool of pigs. I think the studies do show a glimmer that maybe it’s working, but compared to any of the [medications] that we’ve talked about tonight, it’s minuscule. The study that was done on Crohn’s is what we call open-label, which means everyone got the eggs. People who got this whipworm eggs were highly motivated people who were poised to want to feel better. The ulcerative colitis study didn’t show that the patients went into [remission] when they took the pig whipworm eggs. What I would prefer to see is how it can be purified to deliver what is having the immunological effect.

Dr. Present:
Bill Tremain from the Mayo Clinic said they’ve seen two patients that have gotten sick with the pig whipworm. Everyone said it’s not going to happen, but he showed us two cases from Mayo Clinic.

Link.