Reply to thread

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Hey y'all,

My name is Jamie Lynn and I was diagnosed with [wiki2="Crohns-Disease"]Crohn's disease[/wiki2] ten years ago when I was 16 years old.  I'm orginally from Washington State and have recently moved down to Southern California.  I have been through every medication possible, [wiki2="Pentasa"]Pentasa[/wiki2], Prednisone, Remicade, 6-MP, Asacol, etc.  The remicade was working but ended up becoming allergic to it and having convulsions,throat closure, and vomiting as reactions.  6-mp also worked for a little while until I found out it was hurting my liver.  I have been having flair ups off and on and I feel it's getting worse.  I went to see a surgeon and he said that it is usually best to do surgery (removing a piece of my intestine at the end of my small intestine and the beginning of my large intestine) when your are still relatively healthy to lower the risk of complications.  I have been active all my life, I played volleyball in college, ran track and still continue to play sports now.  I am scared to go through with the surgery, but really want to get rid of the pain and symptoms of Crohn's.  I would love any advice about having the surgery, how big the scar will be, the pain of the surgery and recovery period, anything would help me out.  I am stressed to the max right now, and am also thousands of miles away from my family, as they still all reside in Washington State.  I wish everyone with this disease luck in their battle and if I can help in any way with anyone's situation just hit me up!

Thanks! :)


Back
Top