Autoimmune Disease misdiagnosed as IBD :0(

[Rev-Rog]

Hi Team. It's been around a year since I posted last. Much has happened. I have had exhaustive tests by 5 Gastro specialists, the same result and diagnosis. I have most of the symptoms of IBD, but I do not 'have' IBD, and there is nothing more they can do for me. Prednisone is the only medication that switches off all my symptoms - within days. So, I have had to choose between literally dying slowly for the next 30 years with uncontrolled disease, or take high doses of Pred and have quality of life for the next 2 to 5 years, then sucombe to the dire side effects it brings. I have chosen the latter. Sometimes we have to make tough choices in life :0)

Rog

 

[ronroush7]

Hi. I am sorry for what you are going through. Everyone here is for you.

 

[Julia S]

What autoimmune disease do you have, if you don´t mind me asking?
I'm very sorry for all your are going through. I do hope they find medication that is effective and brings fewer side effects than prednisone.

 

[Rev-Rog]

What autoimmune disease do you have, if you don´t mind me asking?
I'm very sorry for all your are going through. I do hope they find medication that is effective and brings fewer side effects than prednisone.

Hi. The specialists cannot identify the autoimmune disease I have. They could run a whole lot more tests, but I would have to be off all meds, meaning I would be very sick. I have decided I have had more than enough tests and trials of drugs and diets.

 

[Rev-Rog]

It appears that all my chronic bowel symptoms were a side effect of my disease, and not the cause.

 

[Rev-Rog]

Hi. I am sorry for what you are going through. Everyone here is for you.

Thank u for encouraging and supporting me, and not trying to tell me what to do, or try to heal me. I appreciate that very much.

 

[ronroush7]

Welcome