Hi Everyone
I am very new here but so grateful to have found this group. I wanted to share what I have went through this past week for a few reasons...I wonder if I am the only one to experience this or if I did something wrong....
I was just diagnosed Feb 28 with moderate Crohn's and a fistula. The treatment was to begin Imuran. One tablet for three days, then two tablets for three days, then three tablets as the ongoing dose. I was scheduled for blood work each week. I began my first dose on that day, the dosing of one pill for those three days were fine. I felt nothing. The day after my first increase to two pills I felt nauseated and tired...checked , this was normal...kept going. The day after my second dose of two pills I felt awful. I felt like I had a fever (but I didn't), muscle aches and pains and a horrible head ach. The third day I just felt sicker than sick. I called the dr and left a message (worried about increasing to 3 pills), they called me back and told me to get blood work and stop the medication. This was now Wed evening, I was instructed to call Friday for results and instructions. Thursday I could barley move my neck, my head was throbbing so bad I thought maybe in the small window of time that I taken this med I had caught a horrible flu and visited my family dr. This doc felt it was a reaction and prescribed Tylenol 3 and Robaxacept for pain and told me to follow up with GI in the morning as planned. I tried but through the night things got worse, I developed a rash and a spasm in my lower spine. I was experiencing the worst head ache of my life and felt like I was going to die. By 7am my hubby took me to the hospital. I was shaking, my blood pressure was low and in agony. The GI was called and I had ultrasounds, blood work, X-rays and even a lumbar puncture and there was nothing found to reason my rash, pain, shaking, head ache. In the end the hospital pumped me full of narcotics for three days until the pain subsided. Its been a couple days now and the pain in my back is just minimal, head ache is gone and rash is clearing...now dealing with all the yuckys of getting all the narcotics out of my system. I still have not seen my GI until Sat and I am nervous as heck! What was this? Was this an allergic reaction? Has anyone one else been through this ? What if he says I need to try this again ? What If new meds do this? I am supposed to be starting Humira at some point....I am in panic mode! I never want to feel like that again! I feel like a freak with a reaction like this! Help!
I am very new here but so grateful to have found this group. I wanted to share what I have went through this past week for a few reasons...I wonder if I am the only one to experience this or if I did something wrong....
I was just diagnosed Feb 28 with moderate Crohn's and a fistula. The treatment was to begin Imuran. One tablet for three days, then two tablets for three days, then three tablets as the ongoing dose. I was scheduled for blood work each week. I began my first dose on that day, the dosing of one pill for those three days were fine. I felt nothing. The day after my first increase to two pills I felt nauseated and tired...checked , this was normal...kept going. The day after my second dose of two pills I felt awful. I felt like I had a fever (but I didn't), muscle aches and pains and a horrible head ach. The third day I just felt sicker than sick. I called the dr and left a message (worried about increasing to 3 pills), they called me back and told me to get blood work and stop the medication. This was now Wed evening, I was instructed to call Friday for results and instructions. Thursday I could barley move my neck, my head was throbbing so bad I thought maybe in the small window of time that I taken this med I had caught a horrible flu and visited my family dr. This doc felt it was a reaction and prescribed Tylenol 3 and Robaxacept for pain and told me to follow up with GI in the morning as planned. I tried but through the night things got worse, I developed a rash and a spasm in my lower spine. I was experiencing the worst head ache of my life and felt like I was going to die. By 7am my hubby took me to the hospital. I was shaking, my blood pressure was low and in agony. The GI was called and I had ultrasounds, blood work, X-rays and even a lumbar puncture and there was nothing found to reason my rash, pain, shaking, head ache. In the end the hospital pumped me full of narcotics for three days until the pain subsided. Its been a couple days now and the pain in my back is just minimal, head ache is gone and rash is clearing...now dealing with all the yuckys of getting all the narcotics out of my system. I still have not seen my GI until Sat and I am nervous as heck! What was this? Was this an allergic reaction? Has anyone one else been through this ? What if he says I need to try this again ? What If new meds do this? I am supposed to be starting Humira at some point....I am in panic mode! I never want to feel like that again! I feel like a freak with a reaction like this! Help!
