I highly suggest journaling a bit every day regarding disease. After a time it all becomes so jumbled it helps to have a reference for myself and for my appointments.
My journaling on crohn's usually takes a list like format where i just quickly scratch down how things are in various categories such as weight, emotional wellbeing, pain level and location(s), [wiki2="Fatigue"]fatigue[/wiki2], exhaustion, appetite and current status of any symptoms as well as what exercise I pursued for the day. If I'm playing with diet i'll throw in what foods i'm working with so I have a more reliable memory then just my recollection weeks or months later.
You so got this!