Hi all,
So about 1 1/2 weeks ago, my GI called me after a visit and had stool and blood work done, and he tells me I tested positive for C Diff.
He puts me on Flagyl for 2 weeks. He actually said that this was good news, because it could explain why the Predinsone he has me on isn't as effective as he would expect, so this should effectively treat the C Diff, and diarreah should go away, then we might not have to talk about 6MP when I see him in September.
I'm guessing it may have been caused from the Bactrim I was put on after I went to the hospital shortly after starting a round of Prednisone again in early July (prescribed by GI for Crohn's), and the ER thought I had a UTI/bladder/kidney infection.
Then a few days later after starting Flagyl, extreme frequent urination, and growing discomfort to pain in pelvic area and uretha...UTI again? And diarrhea getting worse, not better. I called my GI, and he said it the Flaygl doesn't explain the other symptoms I'm complaining about.
I went to Urologist and he said I have prostratitis (prostate infection) and put me on Cipro. He was aware that I have C Diff, so he said we're going to have be careful, it's a balancing act.
I stop the Cipro tomorrow (although I'll have a few days left of pills, and the Urologist said if I feel the symptoms return, I can use them...wtf?), and the Flagyl I take for another 2-3 days after I stop the Cipro.
Right now, my Crohn's symptoms, seem somewhat normal on the Prednisone...that is, the predinsone (I'm tapered down to 40mg/day currently) helps me get through most of the day until about 10pm. Then around 10, I have 1 BM before bed -- semi-formed, but disintegrates in water, then I wake up usually around 1-3am, have another another BM, looser, like sand or sediment, then another a couple hours later, same as before, or more diarrhea, then finally wake up in the morning and do the same thing again, very loose or diarrhea, then I'm good again until 10pm usually...just a lot of gurgling going on in my gut throughout the day.
I'm supposed to be driving to Florida this week w/ my daughters (1,000 miles one-way!) for vacation, and am concerned about the C Diff....how do I know if what I'm seeing in my BMs are just my normal Crohn's nonsense or if it's the C Diff? How fast does C Diff take to become dangerous? My doctors don't seem to be concerned, but my GI and Urologist both said I should be fine to go on the trip. But my GI was on vacation last week and doesn't know yet about my Urologist giving me the Cipro (I plan on calling him if he's back tomorrow and letting him know), but I suspect he thought that might happen if I was diagnosed w/ infection.
Sorry for the long spiel....anybody have experience w/ C Diff???
DX Crohn's D 2008
--------------------
Prednisone
Asacol
Flagyl
Cipro
So about 1 1/2 weeks ago, my GI called me after a visit and had stool and blood work done, and he tells me I tested positive for C Diff.
He puts me on Flagyl for 2 weeks. He actually said that this was good news, because it could explain why the Predinsone he has me on isn't as effective as he would expect, so this should effectively treat the C Diff, and diarreah should go away, then we might not have to talk about 6MP when I see him in September.
I'm guessing it may have been caused from the Bactrim I was put on after I went to the hospital shortly after starting a round of Prednisone again in early July (prescribed by GI for Crohn's), and the ER thought I had a UTI/bladder/kidney infection.
Then a few days later after starting Flagyl, extreme frequent urination, and growing discomfort to pain in pelvic area and uretha...UTI again? And diarrhea getting worse, not better. I called my GI, and he said it the Flaygl doesn't explain the other symptoms I'm complaining about.
I went to Urologist and he said I have prostratitis (prostate infection) and put me on Cipro. He was aware that I have C Diff, so he said we're going to have be careful, it's a balancing act.
I stop the Cipro tomorrow (although I'll have a few days left of pills, and the Urologist said if I feel the symptoms return, I can use them...wtf?), and the Flagyl I take for another 2-3 days after I stop the Cipro.
Right now, my Crohn's symptoms, seem somewhat normal on the Prednisone...that is, the predinsone (I'm tapered down to 40mg/day currently) helps me get through most of the day until about 10pm. Then around 10, I have 1 BM before bed -- semi-formed, but disintegrates in water, then I wake up usually around 1-3am, have another another BM, looser, like sand or sediment, then another a couple hours later, same as before, or more diarrhea, then finally wake up in the morning and do the same thing again, very loose or diarrhea, then I'm good again until 10pm usually...just a lot of gurgling going on in my gut throughout the day.
I'm supposed to be driving to Florida this week w/ my daughters (1,000 miles one-way!) for vacation, and am concerned about the C Diff....how do I know if what I'm seeing in my BMs are just my normal Crohn's nonsense or if it's the C Diff? How fast does C Diff take to become dangerous? My doctors don't seem to be concerned, but my GI and Urologist both said I should be fine to go on the trip. But my GI was on vacation last week and doesn't know yet about my Urologist giving me the Cipro (I plan on calling him if he's back tomorrow and letting him know), but I suspect he thought that might happen if I was diagnosed w/ infection.
Sorry for the long spiel....anybody have experience w/ C Diff???
DX Crohn's D 2008
--------------------
Prednisone
Asacol
Flagyl
Cipro
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