CCFA Partners: IBD online registry

[nogutsnoglory]

"CCFA Partners is an ambitious program from the Crohn's & Colitis Foundation of America (CCFA) designed to improve the quality of life for patients living with inflammatory bowel disease (IBD) through research and education. We plan to enroll at least 10,000 or more patients in an online registry to obtain a better understanding of issues facing IBD patients, how they are functioning, what they eat, and how they receive treatment in different areas of the country. We use this network to provide topics for patients to discuss with their physicians and to help improve their quality of life."

The survey is only twice a year and provides critical information that will in turn help the entire IBD community.

Please consider filling out the survey
http://www.ccfa.org/research/current-research-studies/ccfa-partners.html

 

[Cross-stitch gal]

This sounds pretty interesting! I have looked into info with CCFA since I was diagnosed in 1996. Have you ever been involved in these studies? If so, have you needed to do any traveling for this? Thanks

 

[CrohnsChicago]

Already got the e-mail from them and filled mine out yesterday

 

[nogutsnoglory]

Cross I have been participating with this survey for about 2 years now. It's all online and takes about 10 minutes to fill out. I never participated in a study with them where I traveled but have filled out other surveys for them.