Completion protectomy planned-questions

[Nana7]

I am 71 & diagnosed with UC 5 yrs ago. Prednisone,enemas, suppositories, Imuran, each worked for a period of time then bleeding increased. Remicade four times and diarrhea massive and could not get dr to see me, finally went to ER. Admitted and treated for 1st time with IV prednisone. Doctors asked me " where do you want to be sent to see a surgeon?" ( they had good GI surgeons there).
I feel they wanted me out of their hospital. Transferred to another medical center and admitted. Symptoms slowed and sent me home to gain some strength and increase nutrition. Severe diarrhea returned in 3 week and was admitted and had a total Colectomy and ileostomy. The 10+ inches of intestine /rectum left has now totally closed with stricture. The doctor can not do a colonoscopy now for observation of the tissue. Now the doctor wants to do a Completion Proctectomy (abdominal & rectal) I am very apprehensive!! Need to know post op time line for pain and how long before I can sit down, rectal drainage?, Everything!! Have begun to have some rectal blood/ mucus too. To help me prepare for surgery in Aug probably.
All responses to me I know will help.

 

[SupportiveMom]

Hi Nan7. Sounds like a lit of stress you are under! Just so I understand you had a colectomy and they left 10+ inches, now they want to go in & remove the rest & the rectum?

My kid is having a full colectomy this summer & we are waiting to confirm if it is a proctocolectomy. For sure it is an ileostomy. The question is if it will be permanent.

We are worried about the short term but know life has to be better than this. I have been connecting to others in person and it has really helped. I found people in my local crohns colits chapter, and Ostomy chapter. Sometimes speaking face to face helps answer those questions.

We were told surgery recovery in hospital is 4-6 days, recovery at home is 6 weeks.

I'm sure others already through it will respond soon. Just remember everyone is different!