Crohn's Disease or Ulcerative Colitis

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Joined
Feb 7, 2011
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Hello, I do not know exactly how long I have been with this issue. I am guessing It began sometime in 2006. In 2009 after 24 hours of no sleep or little because of discomfort and the increase of pain, I took myself to Urgent Care. I was taken in and was given several medical tests, including blood work and CAT Scan and X Ray.

After several hours of tests and laying in my medical bed an older medical professional came and said his diagnosis was Ulcerative Coilitis. It was based upon the fact my Blood work had Higher levels of blood white cells, to which he concluded was due to the inflamation in my Digestive track.

I was glad and sad. For about 2-3 years before this incident I was awaken almost every morning, by the need to deficate or pain in the stomach. I would wake up around the same time each morning, around 9:30 -10am. I would spend about 20 minutes on the toilet, sometimes releasing bowels and sometimes not. This would be my throne for the morning, as I would see the bathroom for the next 3 hours on and off. By Noon usually my stomach had calmed down, and I could return to a 'normal day' mostly without problems.

The pain is normally partial to one place in my body, lower left abdomen right where my Ribcag ends and internal organs are tucked in under them. I have found some strange comfort relief in extending my stomach muscles, I can feel and hear a disctint movement when I do this. I dont know what is occuring inside me, but I feel when I do this, I am assisting in moving trapped feces further down the intestine.

I find myself VERY tired after any meal, sometimes I take a 2 hour nap if Im not at work or if my boss lets me. Its almost like I am drained after eating sometimes, if not almost all the times.


If anyone has any ideas what this sounds like, please include your feed back and or questions. I have alot more to say about my Symptoms, Im just overwhelmed by what to type after years and years of symptoms and no sign of a cure. :yfrown:
 
My feces are not uniform, they are always different by in three main categories. The feces are usually always the same color, a Mar's like sand/tan color.

Sometimes I will deficate and I will have a 'normal' darker stool with brown tones and a Uniform stool shape, like a torpedo. These are rare and I dont feel as bloated or as much discomfort when I release one of these.

The most common is what I call the Leech turd. Its oddly shaped, like it was cut in half the long ways, almost like it was constricted. They have a flatter shape and resemble a large Frito corn chip slightly straightened out. These are normally released in large pairs, equaling the size of larger stools once all piled together.

The third and second most common bowl movement would be a more water/chunky type of stool. The stool chunks are usually quarter sizes or smaller accomponied by large ammounts of water, I do not call this diahrheaa though, because its really not.

Sorry for the graphic details, hope it can help.
 
Every once an blue moon, while having an episode on the toilet, It will cause me to vomit. This starts with pain my stomach and I start to break a sweat, then my mouth starts to salivate alot more and I start to spit out the saliva. 99% of the time I can mentally break myself from vomiting but sometimes Its too much and I vomit. This is usually after a night of sleep (5-8 hours) and sometimes I still have food in my vomit, a few times just Green bile.
 
First, I love your user name. Second, I love how you jump right in there with graphic descriptions of your poops. You'll fit in here just fine!

I don't know how anyone can DX you with either Crohn's or UC without at least a flexible sigmoidoscopy, or preferably a colonoscopy. With UC, the activity is all in the large intestine and it's really easy to see with a flex sig!

Have you been to see a specialist yet? I would be really reluctant to have an Urgent Care doc DX me with a serious chronic illness.

Are you on any meds?

I was UC for many years, reDX as Crohn's 2 years ago so most of my knowledge is about UC!!

- Amy
 
I do not like Hosptials and needles very much. I was reluctant to go to Urgent Care because I knew I would have to get stuck. I had made an appointment a few days later with a Specialist. I went in for the consultation and he told me what had to be done, go up my butt with a camera. Im like, cool, I can take a tiny lil wire going up a few inches.

Then I read the paper. I cannot eat for certain ammount of hours, I have to be put under and have an IV placed into me. I told him forget it right then. I had enough of that pin cushion stuff at the UC that made me vomit on the nurses shoes.

From what I had read, UC and Chrons really have no permanent fix or drug that can relieve you completely or without some side effects. I dont have Medical coverage and this was already gaining more attention than my wallet can handle.
 
I live in California and I have since aquired a Medical Marijuan Liscense, Prop 215. This is my only 'medication' for my stomach. In the morning after medicating I rarely have any issues and I have never thrown up while under marijuana's medicating effects.

It helps me greately because I do not have an appetite while I am bloated and in pain, I can go an entire day without wanting to eat.
 
You really need to have the scope to get a firm diagnosis. There are meds that can put you in remission. I was symptom-free for 7 years before it flared back up. No, it's not a cure, but it's a hell of a lot better than the alternative. IBD can cause major, major problems if left untreated.
 
I know it can be tough to think about getting all this treatment without health insurance. If you can't hack not eating for a day and being put under general anesthesia, I got news for you - it's gonna happen someday if you get really ill because you have ignored your disease. Sorry to be harsh, but I sit here today with no colon and let me tell you that emergency surgery because your colon has ruptured is way less fun than not eating for a few hours.

I hope the medical MJ helps you feel better, but what I really hope is that you will conquer your fears and are able to get the care that you need. If you are not having any blood, you can probably be on a maintenance drug like sulfasalazine, which is really cheap and has very little risk of side effects.

Good luck. Keep us posted on your progress - Amy
 
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