Hello
My name is Marcy I am 42 years young and I have Crohn's.
I was diagnosed by an awesome surgeon who was the only one who would really listen to my problems. After thinking it may have been adhesion's from previous hysterectomy and umbilical hernia repair. What started as a rather simple procedure turned into a laparotomy and loosing my appendix.lower portion of my colon ( cecum and ileum ) the 27 cm of my small bowel,drainage of an abscess,and 2 fistules found, I was then in recovery and devastated by what had happened.
I had been told by 2 other gastro docs my problem was mostly in my head. (I am also manic depressive with anxiety and panic attacks) Eventhough they had removed several polyps a year earlier they still insisted it was all in my head.
Well now I am almost 7 years from the day I found out what my problem was. 60 pounds lighter and trying to be wiser I still run into walls every time I turn around.
The only medication the last GI would have me on is Bentyl,welchol,and tylenol for pain which does not a thing. I take B12 shots every week at home. An I am here to tell you now that he gave me these scripts did my colonoscopy over a year ago. He no longer takes my insurance. Of course I couldn't understand why in November of last year his office would just tell me to rest,liquid diet for 3 or 4 days. Well did all that and since November it has gotten progressively worse.
My pcp won't help so I have been calling my insurance and they can't even give me names of doctors because so many are changing over to Teranova services????
I honestly don't know how much longer I can handle this at this point. Imodium 3 times a day isn't helping, the pain is worse than childbirth..And I had 3 totally natural,no drugs and this pain literally brings me to tears. I spend most of my nights in a hot tub or laying with the heating pad, my joints ache terribly and eating has become a chore in itself. I eat,pain , then bathroom. The newest symptoms are rectal bleeding even if I am just urinating, massive rectal pain, and as of last week a fever that spikes at night with chills and shaking. The last 3 nights it has hit 104*
I am exhausted all the time I don't sleep much at night because I am hurting so bad to try and comfortable is a joke. I feel as if I could drink my pool dry. I drink almost half gallon of water a day not to mention other things as well gatorade pedialite and still nothing is helping..
As of this afternoon,
my surgeon called me he had made me an appointment with a Internal Medicine doctor at the practice who has dealt with Crohn's patients. He can get me in on the 24th, but actually gave me his after hours cell # and told me the emergency clinic is open 24 hours a day and if I need to go he will meet me, and this doctor doesn't know me from Adam.My wonderful surgeon has filled him in and I just love him for that. Why can't all doctors go that extra mile for their patients.?
I am so glad I found this forum to have others I can just talk to about this disease. Although my family and friends are supportive they have no realization of the pain and humiliation that comes along with all of it.
Do any of you just get to a point that you wish they would just take it all out so you wouldn't have these issues anymore?
Thank you so much for making so many newbies like myself feel so welcome:redface:
My name is Marcy I am 42 years young and I have Crohn's.
I was diagnosed by an awesome surgeon who was the only one who would really listen to my problems. After thinking it may have been adhesion's from previous hysterectomy and umbilical hernia repair. What started as a rather simple procedure turned into a laparotomy and loosing my appendix.lower portion of my colon ( cecum and ileum ) the 27 cm of my small bowel,drainage of an abscess,and 2 fistules found, I was then in recovery and devastated by what had happened.
I had been told by 2 other gastro docs my problem was mostly in my head. (I am also manic depressive with anxiety and panic attacks) Eventhough they had removed several polyps a year earlier they still insisted it was all in my head.
Well now I am almost 7 years from the day I found out what my problem was. 60 pounds lighter and trying to be wiser I still run into walls every time I turn around.
The only medication the last GI would have me on is Bentyl,welchol,and tylenol for pain which does not a thing. I take B12 shots every week at home. An I am here to tell you now that he gave me these scripts did my colonoscopy over a year ago. He no longer takes my insurance. Of course I couldn't understand why in November of last year his office would just tell me to rest,liquid diet for 3 or 4 days. Well did all that and since November it has gotten progressively worse.
My pcp won't help so I have been calling my insurance and they can't even give me names of doctors because so many are changing over to Teranova services????
I honestly don't know how much longer I can handle this at this point. Imodium 3 times a day isn't helping, the pain is worse than childbirth..And I had 3 totally natural,no drugs and this pain literally brings me to tears. I spend most of my nights in a hot tub or laying with the heating pad, my joints ache terribly and eating has become a chore in itself. I eat,pain , then bathroom. The newest symptoms are rectal bleeding even if I am just urinating, massive rectal pain, and as of last week a fever that spikes at night with chills and shaking. The last 3 nights it has hit 104*
I am exhausted all the time I don't sleep much at night because I am hurting so bad to try and comfortable is a joke. I feel as if I could drink my pool dry. I drink almost half gallon of water a day not to mention other things as well gatorade pedialite and still nothing is helping..
As of this afternoon,
my surgeon called me he had made me an appointment with a Internal Medicine doctor at the practice who has dealt with Crohn's patients. He can get me in on the 24th, but actually gave me his after hours cell # and told me the emergency clinic is open 24 hours a day and if I need to go he will meet me, and this doctor doesn't know me from Adam.My wonderful surgeon has filled him in and I just love him for that. Why can't all doctors go that extra mile for their patients.?
I am so glad I found this forum to have others I can just talk to about this disease. Although my family and friends are supportive they have no realization of the pain and humiliation that comes along with all of it.
Do any of you just get to a point that you wish they would just take it all out so you wouldn't have these issues anymore?
Thank you so much for making so many newbies like myself feel so welcome:redface:
