Crohns

[finnigan]

crohns

hi im totaly new to this so may ramble ! i was diagnosed with crohns in 2008 after at least ten years of docs fobbing me off as ibs i was sent home from a &e several times with paracetemol it wasnt until my horse kicked me in my stomach they kept me in after 2 wks of being told nothin was wrond my husband had a bit of a tantrum ! i was rushed to theatre whre it was found i had severe crohns and peritonitis i am now left with only 120 cm of small bowel i currently take mercaptapourine and mesalazine though the condition is still active i have just had my first dose of humira and would love to speak 2 anyone else on this med as i am really apprehensive abt it would be grateful for any advice thanx

 

[DustyKat]

Hi finnigan and :welcome:

I'm glad to see you found your way here. Whoa 10 years of fob off and unfortunately you're NOT ( thanks Dex) the only one here that has had a very lengthy time of misdiagnosis. There is a Humira club here so you might like to browse through it, but beware it's long! :lol:


http://www.crohnsforum.com/showthread.php?t=6500


My daughter was also diagnosed on the operating table, not very pleasant ay. I hope you stick around 'cause this is a safe and friendly place to hang out with heaps of experience, support and info.

Welcome aboard!

All the best,
Dusty

 

[Crohn's 35]

HI Fin, welcome to the forum! :bigwave:. Lots of people on here have had the IBS story too, whilst it sounds like BS, it is hard to diagnose Crohns and some on here still dont have a diagnosis.

I have been on Humira, it is pretty easy and in my opinion not as strong as Remicade. It was first a must to be on Remicade for some insurance companies but now most are starting on Humira. Cimzia is usually last if it is in your country. Humira didnt work to long for me but others have done miracles!

BTW your story wasnt long, gosh we are in trouble lol.

Hope to see you around! :goodluck:

 

[Dexky]

Hi Finn, Welcome!! I think Dusty meant you're not the only one with a lengthy mis-dx. There are several with lengthy non-dxes as well. I hope you find the info you're looking for in the humira thread. Good luck and stick around!!

 

[beth]

Hi Finnigan,

What they all said... Humira is great. I take it you've just had the 4 loading doses? They should start to kick in about 4 days after! Well they did for me, it was a subtle thing, I actually felt able to do something and not feel wiped out after. However, I know with some people it take a lot longer, or doesn't work for them at all. Good luck, and hope it works for you!
Despite the dire warnings of death and pestilence on the leaflets it is pretty safe what with the pre-screening blood tests. You just have to make sure you are feeling well(ish) and don't have a temperature before taking it. Then it's as safe as you're going to be!

I'm guessing you are on once a fortnight injections? Keep in touch with your IBD nurse and consultant, as it wouldn't be unknown for the goodness to slide away after the loading doses wear off. I'm now on weekly injections as are a couple of other people on here.

 

[Brindle]

Hi Finnagin,

Welcome to the forum. You'll be amazed the friendliness and wealth of information you will receive from all the fine folks of the forum. Hope that you reach some comfort soon.

 

[finnigan]

thanx everyone for being so welcoming yes beth i had the loading dose on tues was pretty terrified after reading all the blurb but when i first started azathioprine then mercaptopurine i was just as wary its great to be able to speak to others my poor husband gets all the moaning i also have heart probs and a pacemaker so he spends a lot of time takin me to hosp bless him

 

[Astra]

Hi finnigan
and welcome fellow Brit

The old IBS? yes, been there, done that, for 15 years!
glad you found us, lots of friends here for you, lots of support too.
good luck with the Humira!
lotsa luv
Joan xxx