Dont feel well.

[Lydia]

Off and on I get these bouts of muscle stiffness. It gets worse when I sit or lay down. I can feel whenever I roll over in my sleep and it wakes me up. It feels like I fell down the stairs or something. When I get active the pain subsides, and I feel really good, but when I rest it comes back.

Now I have a lump feeling in my throat and in hurts to swallow. Its accompanied by some heartburn and nausea and lots of belching. I dont know what that it, and Tums dont do a thing for it.

My bowels are a little painful. No D but they hurt.

My infusion is due on Wednesday. I decided to take pred because the other day when I took it my muscles felt a lot better. I think I will take it until my infusion.

This does not feel viral or bacterial, it feels like my body hates me for some reason.

 

[Sailorluna]

Hi Lydia,
I am sorry to hear you are not doing well. No advice for you but, I hope you feel better soon. I did not know you could take pred when you want to. I thought that it was a multiple-month long commitment once you started?

 

[Lydia]

No you can take a quick and dirty course of it, as my GI called it once. You shoudnt do it too often and you should talk to your doctor so you know what to do. My GI agreed to it because I live in an isolated community with little medical facilities. I do plan to call him on Thursday.

 

[Astra]

Big hug your way Lydia,
it's not like you to be poorly, really hope it's just a blip and settles down soon
xxx

 

[handle]

It's hard to say but could be a thyroid problem from your description and with the cortisone affecting the symptoms. You were also right to try the tums - maybe chamomile or peppermint tea also.
All the best.

 

[littlemissh]

Hoping you are feeling better soon Lydia. If the preds working it may be an inflammatory thing like myositis or similar, you can get this with certain viruses so hopefully a short burst of (or dirty burst) pred will do the trick!

 

[Lydia]

The pred I took this morning helped my throat quite a bit. The lump is pretty much gone, where this morning it felt like I was swallowing thumbtack that was stuck. My muscle soreness is better too.

I am hypothyroid, but my last TSH test was normal with the amount of synthroid I am on. I could ask for another test.

I hope its just because I am so close to needing another remicade infusion and that I will feel better once I get it on Wednesday.

 

[Hazardous?_3]

This does not feel viral or bacterial, it feels like my body hates me for some reason.

IDK how many times ive said that.

 

[Entchen]

Take good care, Lydia and feel better soon. Hugs to you.

 

[Lydia]

Ever since I started the pred, my body does not hurt, and my throat feels great.

I took 25mg yesterday, 20mg today, and 15 tomorrow. Wednesday I will take 10 and hopefully the remicade will make me all better.

Feeling all anxious and crazy though. God I hate pred.

 

[AndiGirl]

I hope you are feeling better, Lydia.

 

[Lydia]

I left a message with my GI and he called me back today. He is the best GI anyone could ask for. Which is why I still see him even though I moved a 4 hour drive away. Anyway he said if my throat is still acting up after my infusion he wants me to call him and see him ASAP. He said he may do a quick scope to get a look at it. I told him everything that was going on and he wants me to get remicade every 6 weeks now. So that is where I am at. I told him about the pred, and he said to go from 15,10, to 5 mg over the next 3 days and it should be fine.