- Joined
- Apr 20, 2012
- Messages
- 8
dose any of this sounds familiar?
Hi all, I am new to the forum, and I have a few questions. I am still seeking a DX for the problems I have been having, and the GI doc (whom i strongly dislike), is thinking crohns, but he isnt very communicative. so here is a short history....
DX of Ankylosing Spondylitis in 2008, sept 2011 I had a bladder surgery for stress uterine incontinence, that's when my problems started. for 2 -3 months, I only had a bm every 4-5 days (before surgery i was every day regular), and after bm i would have 1-2 days of diarrhea. I didn't worry too much, figured it was from the antibiotics they gave me during surgery. at 3 months, I saw my PCM (whom I LOVE) and he suggested I try some probiotics to get my gut bacteria back to normal. Now, i am also lactose intolerant and have been since 1988, but yogurt has never been an issue, so I went and bought the "Activa" yogurt , found out 30 minutes after eating one that it has LACTOSE!!! well, needless to say, i spend 2 weeks in a lactose flare and started on a different probiotic. a month later, I went back to my PCM, told him the only thing that changed was that now I was no longer constipated, but had diarrhea, stomach grumbling and could feel the food moving through my intestines, and with in 1- 2 hours was running to the restroom. He did some blood work, stool samples and sent me to a GI doc. The GI doc scheduled me for a endoscopy/colonoscopy, 2 weeks later, did that. (had a horrible experience with the prep which left me severely dehydrated) and had a abdominal sonogram. all that came back normal. GI doc made sure to tell me repeatedly that I had a torturous colon (I knew and told him that from a previous scope done) and he was not able to get very far and he to use a child scope. The only thing he found was red spots in my stomach lining (which the biopsy came back clean). So now, i am waiting for an IBD panel (which was done wednesday) and also waiting for the insurance to approve the camera scope (the one you swallow).
In the mean time, I have lost 25 lbs in 5 months, i have had multiple accidents while out with my family, when i eat, i feel like crud for a few hours and feel like i have to stay near the restroom. I've cut out all red meat from my diet as that makes it worse, and I'm feeling like a prisoner to the restroom.
I know that with one auto-immune disease, its likely to have more pop up, and I have had IBS dx from a scope done 5 years ago (regular screening for colon cancer/FAPS). I am on humira weekly (for 4 years) for my AS, and it has done winders, but it does not seem to be doing much for my digestive issues.
I guess Im just wondering if any of this sounds familiar to anyone with a IBD dx.
Thanks in advance for any advice or comments!!
Carrie
Hi all, I am new to the forum, and I have a few questions. I am still seeking a DX for the problems I have been having, and the GI doc (whom i strongly dislike), is thinking crohns, but he isnt very communicative. so here is a short history....
DX of Ankylosing Spondylitis in 2008, sept 2011 I had a bladder surgery for stress uterine incontinence, that's when my problems started. for 2 -3 months, I only had a bm every 4-5 days (before surgery i was every day regular), and after bm i would have 1-2 days of diarrhea. I didn't worry too much, figured it was from the antibiotics they gave me during surgery. at 3 months, I saw my PCM (whom I LOVE) and he suggested I try some probiotics to get my gut bacteria back to normal. Now, i am also lactose intolerant and have been since 1988, but yogurt has never been an issue, so I went and bought the "Activa" yogurt , found out 30 minutes after eating one that it has LACTOSE!!! well, needless to say, i spend 2 weeks in a lactose flare and started on a different probiotic. a month later, I went back to my PCM, told him the only thing that changed was that now I was no longer constipated, but had diarrhea, stomach grumbling and could feel the food moving through my intestines, and with in 1- 2 hours was running to the restroom. He did some blood work, stool samples and sent me to a GI doc. The GI doc scheduled me for a endoscopy/colonoscopy, 2 weeks later, did that. (had a horrible experience with the prep which left me severely dehydrated) and had a abdominal sonogram. all that came back normal. GI doc made sure to tell me repeatedly that I had a torturous colon (I knew and told him that from a previous scope done) and he was not able to get very far and he to use a child scope. The only thing he found was red spots in my stomach lining (which the biopsy came back clean). So now, i am waiting for an IBD panel (which was done wednesday) and also waiting for the insurance to approve the camera scope (the one you swallow).
In the mean time, I have lost 25 lbs in 5 months, i have had multiple accidents while out with my family, when i eat, i feel like crud for a few hours and feel like i have to stay near the restroom. I've cut out all red meat from my diet as that makes it worse, and I'm feeling like a prisoner to the restroom.
I know that with one auto-immune disease, its likely to have more pop up, and I have had IBS dx from a scope done 5 years ago (regular screening for colon cancer/FAPS). I am on humira weekly (for 4 years) for my AS, and it has done winders, but it does not seem to be doing much for my digestive issues.
I guess Im just wondering if any of this sounds familiar to anyone with a IBD dx.
Thanks in advance for any advice or comments!!
Carrie
