I was wondering if some of you are still extremely exhausted even when you are in remission. I am feeling really good and have formed BM's, but I am always tired. I used to wake a lot in the night, especially while I was on Prednisone, but I am down to 5mg and off it in three days(yeah) and sleeping through most of the night, but still super tired. Yesterday, I did some errands in the morning, went out for lunch and planted a few flowers in my garden, and by 4PM I had to lay down for a sleep. I have even decided to close my home daycare, because I do not have the energy for the children and the activities. It is frustrating, because I feel pretty good other than the exhaustion.
Exhaustion in remission
- Thread starter BrendaJ
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How are your iron levels, Brenda? If you were anaemic before you went into remission, then you could possibly still be now.
Thanks for the suggestion. I had all my bloodwork done during my last flare and my GI said everything looked ok, so I am assuming that my iron levels are fine. I also have some bloodwork once a month, to monitor my bodies reaction to Imuran and it has all been fine, as well. I hope once I close my daycare and get a little time to rest, the exhaustion won't be as bad. I have been under a lot of stress lately with it and maybe getting rid of the stress will help.
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Hi,
I think it takes quite a while for the body to get over the incredible strain of the illness, and lack of sleep! Give yourself a chance to recover properly. It's no wonder you are tired - your body probably wants to sleep for a month....not that we ever get that luxury. Hope you manage to take it easy.
all the best.
I think it takes quite a while for the body to get over the incredible strain of the illness, and lack of sleep! Give yourself a chance to recover properly. It's no wonder you are tired - your body probably wants to sleep for a month....not that we ever get that luxury. Hope you manage to take it easy.
all the best.
Join the club! It's worth asking specifically about your iron levels, because they can show an artificial high in a flare, and they don't get checked in your normal imuran blood work. While they're at it, ask for your b vitamins to be checked. Apart from that, I found keeping hydrated, and consuming salt and potassium as well as water, helps me. Eating as healthily as is possible for you, and gentle exercise too can help. But don't overdo it else you will feel worse the next day.
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me too!
I have the same problem. I sleep every morning and just getting out of the house is a good day for me. I have had b12 shots every week for 6 weeks, not much help. They are in the process of trying to get me approved for an iron infusion because iron pills didn't work and my iron shows I am very anemic. I have noticed despite other things getting better the tired, weak and brain fog is the worst!! I feel for you. Try checking your potassium levels, b and d and iron. All important I have found because those are vit. crohns people have trouble absorbing. All I can say is I have been dx for 3 months and I have found you need to advocate and educate yourself. Keep in touch I hope to hear you have more energy. Does it feel hard to concentrate or do u have a bad memory? All that I have noticed since symptoms started 2 years ago. Remember your not alone. :ghug:
I have the same problem. I sleep every morning and just getting out of the house is a good day for me. I have had b12 shots every week for 6 weeks, not much help. They are in the process of trying to get me approved for an iron infusion because iron pills didn't work and my iron shows I am very anemic. I have noticed despite other things getting better the tired, weak and brain fog is the worst!! I feel for you. Try checking your potassium levels, b and d and iron. All important I have found because those are vit. crohns people have trouble absorbing. All I can say is I have been dx for 3 months and I have found you need to advocate and educate yourself. Keep in touch I hope to hear you have more energy. Does it feel hard to concentrate or do u have a bad memory? All that I have noticed since symptoms started 2 years ago. Remember your not alone. :ghug:
