Favourite drug

[jed]

favourite drug

so whats your favourite drug?

I gotta say that mine is a prednisol suppository. available from chemists over here, but they keep them in the fridge (something to do with the pred in them), so they're not on the shelf with the other suppositories.

i use one everynight before i goto bed (my longest time between toilet breaks) and i always feel a bit less inflamed every morning


its one drugs i've always liked in this fun game.

 

[soupdragon69]

Hi Jed,

Got to say the remicade is my fav. Its the only drug that has had such a massive impact on ALL my health probs.

Its helped clear my skin to the extent I dont itch 24/7 and dont have constant boils that last for months. The inflammation of my skin settles too on my back, chest and face.

Its helped my asthma to the extent I have been able to cut back on some of my meds and my attacks arent as frequent.

Its helped my guts to the extent everything eases up for 2-3 wks and goes into the background enough for me to have a reasonable life.

My muscle and joint pain ease too and I can walk and move much better.


P.S I laugh everytime I see the little guy at the bottom of your postings. Its class!

 

[Jeff D.]

Yeah I love remicade as well. Go in a for a few hours and I'm done. Not many other medications. I just have to remind them to use the lower part of my arm because I have a vein in my elbow that hurts so much when ever they put in or take out an IV.

 

[jed]

bah! i want remicade (infliximab down here)!!!!!!!!!!!!!!

i really want to try it!

my docs are trying to swindle a way so i can get on the free list for it, just cant afford the $$ otherwise:*(

there trying to put a case together with both my arthritus and crohns together.. fingers aer crossed!


(let me know when yu get tired of him soup, i have hundreds more animations here)

 

[soupdragon69]

Its infliximab here too Jed but the folks on here use the brandname more to recognise it easier.

I am off to the rheumatologist on July 1st to "explore" things on that front more.

Hope you get onto the list soon. We are so fortunate here in the UK with the NHS as our national insurance contributions pay for meds like inflix and we dont have the extra stress. I know there is no way I could have afforded it otherwise.

Now that they are stopping my remicade I am twitchy for the above reasons even though they are trying to find something or a way that brings me more benefits.

Right am off to the shower as got to head into work shortly on my 12hr day!

 

[BWS1982]

Jan, you work 12 hour days in such condition? Lucky patients have a dedicated nurse.

Yeah, Jed, Infliximab here too. That's just the generic name for Remicade, like Ibuprofen Vs. Advil....

I don't have a fav. drug except maybe the Versed or Fentonyl (sp?) they gave during my colonoscopies...they were the only one's to calm me and make me not give a shit (proverbially, not literally)....of course I've only had those 3 times in my life, but they're as close to getting "high" as I've come, and it was relaxing....all other drugs seem to fail me. Maybe I like my tylenol, seems to help me a good deal in most cases.

It's sad I'm on 12 diff meds and I don't really like any of them. Of course I probably would be worse without all 12, but I have no clue which of the 12 I should credit for anything.

 

[jed]

but I have no clue which of the 12 I should credit for anything.

and that, my friend, is what sh*ts me the absolute most about this desease. we take all this stuff and i've never really known if they're doing anything super helpfull.

i mean, half the drugs have a side effect of diareaha????? why the hell do i have to take a drug thats going to make me spend more time in the toilet?

and if its working, how am i going to know anyway? i'm still in the toilet with the runs cause of the meds.

bah!

 

[Colt]

Darvocet. It's saved me from some of the worst moments in my life.

 

[karl]

so far i really don't seem to like anything. pentasa are big nasty tasting pills and i have to take 8 a day, plus they don't work and they cost a fortune because my insurance doesn't cover name brands. although i get them for free with the patient assistance program, so that is cool

pred is nasty tasting, the nastiest pill i have ever had. if it sits in your mouth for longer than a second, you will taste it for the next 5 minutes, no matter what you swish around in your mouth, the taste sticks with you. the side effects kind of suck, but it has made me human again and i like it for that

i'm not sure about azathiorpine. its only one pill a day for me, 50mg. i'm hoping it works so i don't have to shell out the cash for remicade

 

[katiesue1506]

I'm going in tomorrow to see if I can persuade my doc to prescribe me LDN... so hopefully that will become my new fave drug.

My fave drug as of now was Remicade... when I was taking it, it threw me right into remission.

I'm on no drugs at all right now... and I like that a lot.

 

[Creepy Lurker]

Chocolate. Intravenously if possible.

More seriously, I have a love/hate thing with Prednisolone.

 

[soupdragon69]

Jed,

Wont get tired of your guy at all he just makes me giggle every single time and I sit fascinated. Easy pleased and amused arent I? ;-)

Benson,

Ach I only work part-time as in 3 days a week! ;-) My boss agreed to no night shift and also no more than 2 shifts in a row. I cope at work by taking 100mg tramadol and 1g paracetamol every 6hrs along with my antispasmodic and anti sickness tablets (am sure I rattle at work!). Stick to foods I know I can tolerate and the painkillers slow my gut down enough for me to work in an isolation room or be in charge (running 8/9 cardiac intensive care beds in a unit of 25 that is split into 3 teams) without sprinting to the loo every 5mins. I also spend my days off sleeping and recovering with virtually no social life outside of the 2-3wks I get with the remicade. We had two patients arrest at the same time this evening. I also looked after a double lung transplant patient today. I love what I do Benson plain and simple. Also being a patient myself means I can empathise more too and come up with better practical solutions at times when my grey cells decide to work!

 

[jed]

I have a love/hate thing with Prednisolone.

lol, i know that feeling well

i'm only taking 2.5mg pred a day at the moment, was supposed to stop taking it a month ago but i just dont want to give it up!

bad things happen when i give it up

 

[Creepy Lurker]

lol, i know that feeling well

i'm only taking 2.5mg pred a day at the moment, was supposed to stop taking it a month ago but i just dont want to give it up!

bad things happen when i give it up

Yup. It took me 2 years to finally get off it. It isn't impossible as long as you go slowly

Good luck!

 

[Kev]

Hey Katiesue, on the LDN thing.. did you do the legwork? Download n printoff the report from the American Journal of Gastro-enterology, spring of 2007 (but it might have been printed later).. Raising the subject, if you've got their own organization print version of it, it will lend more weight to your discussions. And it may remove any initial thought your doc may have that this is holistic or black magic, or whatever. Bear in mind that for a doc to put their name to a prescription for LDN means stepping outside of their comfort zone.. Possible ridicule or referrals loss from peers, perhaps a bit more exposure from potential lawsuit. You got to give them a reason to take on those risks for the sake of one patient, so really gather up all the evidence you can.. but keep the legit stuff at the top... highlighted so they can speed read.. I don't know your doc, but many may offer a 'quick" negative because they can't spare the time to do any indepth research into a trial treatment. All the best, think if it works for you you'll love it forever.

Me? I love my LDN. Literally a life-saver in that it turned things around AND has kept them that way... and I don't have to fret if the cure is worse than the disease. I 'think' LDN may become for crohnies the equal to insulin for diabetics. A nice, gentle, safe treatment that will do till a cure comes along. Maybe better.

 

[katiesue1506]

I went today and brought in a manilla folder with a good amount of info (not too much though because I didn't wanna bombard him) but info about dosing, side effects, compounding pharmacies, how it works, and the penn state study.

HE'S PRESCRIBING IT FOR ME!!!!!!

I'm so excited... and he seemed more than willing to go ahead with it. It'll take a weekish to get my prescription started but I'm good to go!

 

[BWS1982]

That's great, not just for you obviously, but another member here, to help lend some more anecdotal testimony....I would gladly go after LDN before surgery if that's contemplated down the road.

 

[Digits]

Hmm. itd be my Effexor. has nothign to do physically with my crohns...but My GI put me on it the day i was diagnosed, and ive beenon it since (its an antidepressant) so going on 12 years on it. i love it. it makes life happier. sadly tho, we found out a few years ago, not spsed to give to an 8 year old...


Or my Tylenol xtrastrength. i always have a 125 bottle in my purse, i really do rattle when i walk. i get massive headaches everyday, but docs shrug them off because my gut is worse...:\

 

[FruitLoop]

Prednisilone is my all time fav !!

Although i am not a fan of the appetite and weight gain I am a BIG fan of the euphoria !!

Having 3 kids is hard work at the best of times so having a drug that makes me bounce out of bed at 6am and not go back to bed till 1am is great !!

It's like prescribed amphetamines for me - total mania:tongue:

 

[BWS1982]

Prednisilone is my all time fav !!

Although i am not a fan of the appetite and weight gain I am a BIG fan of the euphoria !!

Having 3 kids is hard work at the best of times so having a drug that makes me bounce out of bed at 6am and not go back to bed till 1am is great !!

It's like prescribed amphetamines for me - total mania:tongue:

I envy this "euphoria", 7 months of that would've been nice.

 

[SophieL]

I adored prednisolone... still think back to those days nostalgically. I just felt so amazingly happy and energetic, plus could eat all day. I probably needed to put some weight back on anyway. Like Fruitloop, it's was the weirdest feeling to jumping out of bed at 7 everyday and not feeling remotely tired.

I asked my doctor (as a joke) to put me back on it just for exam term but he said no