Fed up

[shazz31]

fed up

corhns dissease and fed up
hi I new on here and was recomend to join by my consaultant, I have been so unwell,
Last year june I had a majour op where I had to have half my intestine and half bowel removed because it was blocked, they thought it was bowel cancer but did more test and found out it is corhns dissease,I av been undergoing a number of test since then as i keep having flare up im nw on tablet and have inflixmad infusion. I have also notice since haveing my op that i go poo a lot like 6 times a day which is drainin me, I av noticed that everytime i eat within min i need to go toilet and then im empty again ,this is really stressing me as i find it hard to go any were or eat before i go or eat out im always usein pads as i have mishaps on the road I have been written of work at the mo and im so bored but what can i do . I just feel like im a big test for the hospital bein poke and prod ive just had the capsule to test done so patiently wait to c what the out come of that is . I am so fed up I have 2 beautiful kids to think bout and have no energy for them sometime I feel so bad

 

[micjac]

Oh Shazz... this is such an inconvenient, painful and embarassing disease, but it isn't going anywhere. It sucks the energy out of you as well as the food (however, for some reason, I still have "chubs.") anyway, know that you are in the right forum. We are all here for you. Try to concentrate on your beautiful kids. Try foods that you can handle (mine are starches, plain soup, crackers, no fiber.) Take vitamins. There are days when you will have to force yourself to get up and get out. Those days I tend to not eat until I am safely home, but make sure that I know where every bathroom is because an empty stomach doesn't guarantee a poo-free outing.
Good luck! Keep the faith and concentrate on those 2 beautiful kids!
Jan

 

[Catherina]

Shazz, I complete agree with Jan. You have to focus on the nice things only, don't say you can't because you can and you must - if it was only for your two children. When I was first diagnosed with Crohns (after a sudden heavy surgery because of peritonitis) I thought I was going to die (1,76 cm and 45 kilo). But, life goes on. When I got a little better I was diagnosed with severe back problems, when I got better again (I could walk again), my partner was diagnosed with cancer in his pancreas and I got hospitalised with another autoimmune that affected my spinal fluid. As soon as I got on my feet again (had to learn how to coordinate hand and foot again) they noticed I have psoriatic arthritis. Don't worry, whatever comes your way, you can handle it. Stay cool, love yourself for what you are. If nobody tells you how beautiful, lovable and strong you are you just have to tell yourself (and believe in it). Remember that many things you cannot muster the energy to do for yourself, you find the energy and the will to do for your loved ones. Just keep on going!

 

[shazz31]

thank u both i really need to hear sometink upliftin thank u both
i will keep you both posted have a blessed day xx

 

[ameslouise]

Hi Shazz and welcome!

We have all been there... feeling like a pin cushion and the never-ending tests that don't seem to tell us anything new! Hang in there!

Have you had your bloods checked to make sure you are not anemic or low in Vitamin Bs or Vitamin D? These things can all affect your energy level.

What "tablet" are you on?

If you have half your intestine and half your bowel removed, you probably have "short bowel" syndrome. Have you talked to your doc about how to deal with the diahrea? 6 times a day.... at my worst I was going 6 times a night - and twice as much during the day! Anyway, check with the doc or nurse about what they recommend to help with the D.

Good luck - sometimes it takes a while to get the right combo of drugs to get you feeling better. Hang in there!!!

- Amy