Feeling very tired and sleepy

[admiral]

I'm diagnosed with UC/ Crohns. I've been taking Remicade infusions every 8 weeks for over a year now. However I feel extremely tired most of the day. I feel like sleeping a lot of the time and this greatly decreases my productivity.
Does anybody else face this? Can you suggest a good diet to follow that could help with this?

 

[ronroush7]

Have you had your blood checked? You might need b12 or iron. Ask your doctor

 

[admiral]

Have you had your blood checked? You might need b12 or iron. Ask your doctor

I'm taking both folic acid and iron supplements as well. I start feeling all this at the end of my infusion course (just a week before I need to get one again). Maybe because it's "wearing off" ?

 

[ronroush7]

Something similar use to happen to me when I was on remicade. A few days before my next infusion i would start feeling bad again.

 

[Caitlyn336]

I started feeling real tired and my arthritis would flare in between my infusions. I told me doc and he bumped me from every 8 weeks to every 6. Worth mention to the doc if you haven't already!

 

[admiral]

I started feeling real tired and my arthritis would flare in between my infusions. I told me doc and he bumped me from every 8 weeks to every 6. Worth mention to the doc if you haven't already!

Thank you, I'll speak with my doc about it

 

[kschorgl]

I had these same symptoms on remicade and was bumped from 8 to 6 weeks before I eventually had to have the j-pouch surgeries. I was tired constantly for a while-it takes a village. These are what I found worked to help give me any kind of energy:
-iron supplements
-Vitamin D
-drip drop (for hydration. it was made by a Mayo Clinic doctor and tastes great. It's a powder that you add to water and is the equivalent of three waters when having 1. You can only get this at walgreens in the pediatric isle.) I add it to coconut water and I am fully hydrated all the time, which gives me so much energy.

 

[admiral]

Oh okay. I'll give this a try and see what happens. I'm unsure what j pouch surgeries are

 

[kschorgl]

It's the three-part surgery to completely remove the diseased colon and recreate it out of the small intestine by creating a j-shaped pouch. Only UC patients can have this without a permanent colostomy that Crohn's patients will receive.

If you have any more questions, please let me know!

 

[admiral]

It's the three-part surgery to completely remove the diseased colon and recreate it out of the small intestine by creating a j-shaped pouch. Only UC patients can have this without a permanent colostomy that Crohn's patients will receive.

If you have any more questions, please let me know!

I see. I'm going to have to go read about it now! Thank you