From Margaret

[margaret]

Hi, I've never done this before, but I've had Crohn's/ulcerative colits since 2000. I got allergies at the same time or the other way around. I used to have migraine headaches and I guess I traded up to the UC, but I don't get the migraines anymore. But, through a lot of trial and tribulation I have figured out that if I eat any wheat product, of which there are many, I get a "flare" about 12 hours later with bleeding, diarrhea and pain. All symptoms pass in about 12 hours except the bleeding takes a couple of weeks to go completely away. Recently I went off all medications ( for about 8 months and just didn't eat any wheat products) and had absolutely no flares, until Spring! At the very first bloom I was bleeding and nose running and diarrhea. By early June I was so sick my doctor couldn't even go halfway through with the colonoscopy because I was "as bad as or worse" than any inflammation he had ever seen. What to do?! I'm back on drugs, which I hate! I'm on Entocort EC3, 3 a day and started on Humira, which I don't think is doing anything. I'm at least not as bad as I was. It took about 3 weeks to see any results from the Entocort, but the allergies were better. I'm convinced that there's some kind of a relation.( Before I went off meds I was on Mercaptopurine, Remicade and every spring also added Prednisone.)

I went camping in higher elevation where the pollens were worse and I got worse. I came back home and I was better in about 24 hours. I did this two time in a row with the same result.

Has anyone out there had a similar experience? I go back to work in a few days, I drive a school bus, and I will be around a lot of kids with snotty noses, vomiting on my bus occasionally, etc.(Oh joy!!)

Would love to check this site and see what y'all say!

Thanks!

 

[Dallies]

Hello Margaret, welcome to the forum. It's lovely to have you here. xxxx

 

[Dexky]

Welcome Margaret, I've been reading on here for a while but this is, I believe, the first time I've heard it suggested that allergies to pollen might cause flares. You had to add pred. in the spring because you would flare then I assume. It certainly seems plausible that pollen could be a culprit.

Have you been tested for celiac's disease?

 

[Entchen]

Hi, Margaret, and welcome to the forum! What a unique (or maybe not so unique?) response to your allergies, having a flare. Huh. Will be very interested to hear if others have noticed this link. Out of curiousity, do you take year-round allergy meds? I wonder if that might help.
Glad to have you on the forum!

 

[DustyKat]

Hi Margaret and :welcome:

Good to see you hear. It's interesting the link you have between your flares and pollens. You'll find heaps of friendly and knowledgeable people here and I hope you stick around so we can get to know you better.

Welcome aboard!

Take care,
Dusty

 

[Astra]

Hi Margaret
and welcome

A few people have mentioned the corellation between IBD and hayfever! I don't know about this, I don't have allergies!
glad you found us tho, someone will come along with an answer!
Lotsa luv
Joan xxx